Experiences with Ampyra | HealthUnlocked

55 public posts

Is Generic Ampyra working for you?

I've been taking Ampyra for years. About 6+ months ago I noticed my walking was significantly worse. That's about the same time I started receiving the generic form of Ampyra. I don't believe it's working! Has anyone else taking the generic form found that your walking/gait has become worse?I've been taking Ampyra for years. About 6+ months ago I noticed my walking was significantly worse. That's about the same time I started receiving the generic form of Ampyra. I don't believe it's working! Has anyone else taking the generic form found that your walking/gait has become worse?

rfbossbabein My MSAA Community

Hello everyone, I have a question. Is anyone taking the medicine Ampyra to help with walking?

My doctor wants me to start taking Ampyra to help me walk better. This medicine cost around $2,000. My local pharmacy can not fill my prescription because my insurance wants to use their own pharmacy.My doctor wants me to start taking Ampyra to help me walk better. This medicine cost around $2,000. My local pharmacy can not fill my prescription because my insurance wants to use their own pharmacy.

Cutefreckles72in My MSAA Community

Ampyra, working or too early!

I have been on the brand pill Ampyra for about two weeks now. Should I see an improvement by now, or is it too early yet. Before this, I was on the generic for a month and it didn't work; that's why I switched to the brand name. How long before I see some improvement? Thanks.I have been on the brand pill Ampyra for about two weeks now. Should I see an improvement by now, or is it too early yet. Before this, I was on the generic for a month and it didn't work; that's why I switched to the brand name. How long before I see some improvement? Thanks.

lindaz9in My MSAA Community

Neuro appointment today

Ampyra has been my miracle drug and Rebif continues to work well. I am going to try a sleeping pill. Bad sleep and increased fatigue were my only complaints today. On a side note...my tomatoes are taller than I am!Ampyra has been my miracle drug and Rebif continues to work well. I am going to try a sleeping pill. Bad sleep and increased fatigue were my only complaints today. On a side note...my tomatoes are taller than I am!

StacyHaywardin My MSAA Community

Better Nuroligist Different Diagnose keeping my fingers crossed...

He also have me some Duloxetine for my headaches and Ampyra to help with my walking also Baclofen for my muscle spasms... I'll keep you guys posted on how the medicine makes me feel.He also have me some Duloxetine for my headaches and Ampyra to help with my walking also Baclofen for my muscle spasms... I'll keep you guys posted on how the medicine makes me feel.

Msbeauty01in My MSAA Community

Who else has adrenal insufficiency and MS?

I take Ampyra, a potassium channel blocker, so that I can walk, low dose hydrocortisone, and Apixiban. I have refused other medications because as I read about them I do not understand their benefit.I take Ampyra, a potassium channel blocker, so that I can walk, low dose hydrocortisone, and Apixiban. I have refused other medications because as I read about them I do not understand their benefit.

Bodega1939in Canadian Organization for Rare Disorders

Ampyra

Just got Ampyra today. Very hesitant to take it after reading the insert. Anyone have any experience with this drug?Just got Ampyra today. Very hesitant to take it after reading the insert. Anyone have any experience with this drug?

SjWilcoxin My MSAA Community

Spring Break Miracle

Ampyra really has been a miracle worker for me. My family just spent four days hiking in southern Utah. Temperatures were perfect! Ready to be amazed? We hiked....27.53 miles!! That’s a marathon! I’m so excited! Now we’ll see if I pay for it next week!Ampyra really has been a miracle worker for me. My family just spent four days hiking in southern Utah. Temperatures were perfect! Ready to be amazed? We hiked....27.53 miles!! That’s a marathon! I’m so excited! Now we’ll see if I pay for it next week!

StacyHaywardin My MSAA Community

Damn insurance companies

I was on ampyra with a $10 copay then they switch me to the generic was free for a couple months and now they want to charge me a $200 copay for the generic and a $700 copay for the brand name. What the heck! I can't afford either one. What am I supposed to do? Anybody have any ideas? I am fuming.I was on ampyra with a $10 copay then they switch me to the generic was free for a couple months and now they want to charge me a $200 copay for the generic and a $700 copay for the brand name. What the heck! I can't afford either one. What am I supposed to do? Anybody have any ideas? I am fuming.

mayestasin My MSAA Community

I, too, am new but older than dirt!!

Now, suddenly now unable to walk, and the neurologist recommending Ampyra and it working almost immediately (within an hour), the neurologist acknowledge I have not RRMS but progressive MS. And the future however, more tenuous and uncertain, remains.Now, suddenly now unable to walk, and the neurologist recommending Ampyra and it working almost immediately (within an hour), the neurologist acknowledge I have not RRMS but progressive MS. And the future however, more tenuous and uncertain, remains.

Bodega1939in My MSAA Community

Neuro appointment

We only adjusted the time of day I take my second dose of ampyra. Interestingly, I asked him his go to med if I just can’t stand taking Rebif anymore. (I don’t have side effects and it’s working great, but hate shots).We only adjusted the time of day I take my second dose of ampyra. Interestingly, I asked him his go to med if I just can’t stand taking Rebif anymore. (I don’t have side effects and it’s working great, but hate shots).

StacyHaywardin My MSAA Community

Relapsing Remitting ms (RRms)

Opiods and the like were not much help neither was Ampyra. This is not to say that one hundred percent for sure they will not help “YOU”. Al through this journey it pays to be willing to experiment on yourself. As the Briish Special Air Service motto says, Who Dares Wins.Opiods and the like were not much help neither was Ampyra. This is not to say that one hundred percent for sure they will not help “YOU”. Al through this journey it pays to be willing to experiment on yourself. As the Briish Special Air Service motto says, Who Dares Wins.

RoyceNewtonin My MSAA Community

Possible AMN

I especially like the look of Modafinil and Ampyra. Wish I had insurance now. I’ll have to buy online, maybe one of those Canadian pharmacies. Could I ask a question? If my vlcfa levels are high, do I still need a genetic test? If so, do I have to pay?I especially like the look of Modafinil and Ampyra. Wish I had insurance now. I’ll have to buy online, maybe one of those Canadian pharmacies. Could I ask a question? If my vlcfa levels are high, do I still need a genetic test? If so, do I have to pay?

Jackspratein AMN EASIER

Ampyra question

I am seeing my neuro on Wednesday and want to ask about Ampyra. Whether due to MS, my mercury poisoning or something else, my walking has been getting steadily worse. Does Ampyra have side effects anyone has experienced? Is it addictive?I am seeing my neuro on Wednesday and want to ask about Ampyra. Whether due to MS, my mercury poisoning or something else, my walking has been getting steadily worse. Does Ampyra have side effects anyone has experienced? Is it addictive?

IFwczsin My MSAA Community

4-AP/Ampyra

I spoke to my neurologist last visit about 4-AP because it has been talked about here sometimes with good success. I just received a call from her office that she was able to obtain at least 30 days of samples to use. I have a great neuro!I spoke to my neurologist last visit about 4-AP because it has been talked about here sometimes with good success. I just received a call from her office that she was able to obtain at least 30 days of samples to use. I have a great neuro!

Equinneyin AMN EASIER

Ampyra brand name v generic

There is now what is supposed to be a generic version of Ampyra. Here is the kicker the generic name is what the pharmaceutical company currently calls it now dalfampridine. They just dropped the name Ampyra and changed the color of the pill.There is now what is supposed to be a generic version of Ampyra. Here is the kicker the generic name is what the pharmaceutical company currently calls it now dalfampridine. They just dropped the name Ampyra and changed the color of the pill.

rjoneslawin My MSAA Community

Generic Version of Ampyra

I just read an email from the MS Society that Ampyra has a generic brand that was just approved. Best Regards, LeslieI just read an email from the MS Society that Ampyra has a generic brand that was just approved. Best Regards, Leslie

lbenmaorin My MSAA Community

Dr appointment and ampyra

The only changes we’re making are to add magnesium to help with my toes cramping, which he thinks is from ampyra.The only changes we’re making are to add magnesium to help with my toes cramping, which he thinks is from ampyra.

StacyHaywardin My MSAA Community

Ampyra and toe cramps

Anyone tried ampyra? It’s working fantastically for me and I’m walking much better. However, I’ve had a significant increase in cramping in my toes since starting. Wondering if they are related.Anyone tried ampyra? It’s working fantastically for me and I’m walking much better. However, I’ve had a significant increase in cramping in my toes since starting. Wondering if they are related.

StacyHaywardin My MSAA Community

ampyra

First dose of ampyra this am and feel terrible! Dizzy and light headed. Anyone have this happen?First dose of ampyra this am and feel terrible! Dizzy and light headed. Anyone have this happen?

judymaxin My MSAA Community