Relapsing-Remitting ms(RRms) is not a sprint. I am in my 20th year and it still confounds me at times. She who must be obeyed is in her 23rd year and some of the things that she encounters amazes me, how she manages to get out of bed in the morning, yet alone function.
We are not on a race with a finish; line and cheering crowds. We all are in a marathon. Very few ever notice the struggles the daily adversity that we may go through. Do not expect others to even notice some things. These are our obstacles, our hurdles to conquer. Accept your victories, no matter how small or insignificant they may appear to others. Cherish them, hold them close and remember that "YOU" did that. Not me, not your spouse or children. "YOU" yes "YOU" When "YOU" have your moments of doubt and fear, lust look back ar what "YOU" have achieved, Stoke your internal fire a little and press on. As slowly as "YOU" want, just take another step on your very long Relapsing Remitting ms (RRms) journey. It will be very long, 20 years so far. The end is really not to be yearned for. It is how "YOU" travel, the, quality of your journey and what "YOU" leave behind for those who follow us to learn from, to make the next persons journey a little easier.
I am not a doctor or scientist of any sort, but if I can ease one person's fears on one day, I will have achieved. If "YOU" can do that for one child or grandchild then your life and your sufferings have had meaning. A cure for me is not that important. To make a complete strangers journey a little less daunting is a goal that I can be proud of and so can "YOU".
it is never about me it is always about "YOU" whoever "YOU are.