My thoughts on expectation versus reality - My MSAA Community

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My thoughts on expectation versus reality

RoyceNewton profile image
β€’12 Replies

I have learned over many years that I will fail, not exactly correct. I will change the way I am doing something. Adapt and find a new way to achieve my goal. I may like to put on pants in the morning so I wear shorts they are much easier to get on. It is cold outside so I have to put on warm trousers, so I sit on the bed to put them on. I can never trust my bowel or ladder to behave in public, so Depends makes protective underwear. I wear them. I can rarely get a good spoon at a restaurant, so I bought one and it sits in my bag. Now my mouth is familiar with it, and I can dribble less and get the food in without spilling too much. Of curse I have a bag, to carry the things that do not fit in pockets, something that everyone with Relapsing-Remitting ms (RRms) should carry. I have run into issues where I am overheated or having problems, so I wear a Road Id bracelet that has my name condition and contact details. I have thought of a tattoo that says "if lost please call", but I do not like needles so a wrist band is easier. I never leave home without it, money sometimes, ID never.

Do "YOU" understand that I make a point here. I believe it was the Boy Scouts that said it first, "BE PREPARED" "YOU" like me have RRms maybe 5 years maybe 25 or just starting out, a newbie( newly diagnosed). It really does not matter which, never stop learning the illness and tricks to get through life with it. For my friend, it is a very long ms life that we have and that "YOU" will have in front of "YOU".

This is not an impossible condition. Take a little time, get your head around the diagnose. Buy some Protective underwear and wear them at least until "YOU" have learned some of your bodies idiosyncracies.

"YOU" have RRms, sorry there is no cure for it, but there are medicines "TAKE ONE" if it does not work then try another. I always gave it a month try out and I always ate first and took an Asprin.

Learn all that "YOU" possibly can about this condition. Then forget it and then learn it again. This IS a very doable condition, take your time cry your tears for as long as "YOU" need and start to move along your RRms journey.

A word of advice my tears lasted around 6 months and I have been known to sometimes tear up after 20 years.

This is not an impossible condition, nobody knows why we have it, it just IS and "NOBODY" has a cure, "YET". It is up to us to learn to accept it and cope. Fight it if "YOU" must, manage it if "YOU can, but live with it. Today, tomorrow and for the near future, it is part of our lives, Relax, "YOU" can Do this.

Royce

Of all the people with RRms, you really can do this

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RoyceNewton profile image
RoyceNewton
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12 Replies
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Jesmcd2 profile image
Jesmcd2CommunityAmbassador

What's this road I'd you speak of RoyceNewton ? πŸ€—πŸ’•

JπŸŒ β„οΈ

PS have a good vacation?

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toJesmcd2

ID*

RoyceNewton profile image
RoyceNewtonβ€’ in reply toJesmcd2

I had a great vacation thanks, Road Id os a brand of bycle id that is worn as a wrist band, I am pretty sure that they are not expensive and they come in different colours

I have found that if I turn my expectations into anticipations, I am less disappointed and my "expectations" are "always" met.

carolek572 profile image
carolek572CommunityAmbassadorβ€’ in reply toMS_Indestructible

Good Approach ~ mind if I steal that idea from you? :-D

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply tocarolek572

NO! but I will give it too you. Please use it freely ;)

carolek572 profile image
carolek572CommunityAmbassadorβ€’ in reply toMS_Indestructible

:-D

RoyceNewton profile image
RoyceNewtonβ€’ in reply toMS_Indestructible

ahh no disappointment is just an opportunity to think of and learn a new way to solve a problem

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toRoyceNewton

That's another useful way of looking at it. In general terms I like anticipations over expectations. Thanks for your input.

RoyceNewton profile image
RoyceNewtonβ€’ in reply toMS_Indestructible

My pleasure

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toRoyceNewton

I did forget to mention that I really like your post. It is better to face the reality that ms is and will be with me, rather than to expect a cure or to try to understand why I have it. Your post is well written. Fortunately, I accepted my dx logically, emotionally, I gave myself the right not to accept it or to come to terms with it. I just don't focus on it. If that makes sense, it works for me.

RoyceNewton profile image
RoyceNewtonβ€’ in reply toMS_Indestructible

no, it makes sense

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