advice time again: A very good Saturday... - My MSAA Community

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advice time again

RoyceNewton profile image
12 Replies

A very good Saturday morning to everybody. When somebody gives advice or says they can help, it is quite alright to be a little suspicious. Sometimes what is said is not perfect for "YOU" for any number of reasons. "YOU" live in your head and "YOU" wake up at 3 am. Make that person comfortable, do not just do something because somebody says without some evidence.

I will always say to wear your protective underwear, take your Disease Modifying Therapy (DMT) exercise' eat right, be as mentally and physically strong as "YOU" can be. Not because I have any financial interest in your life but because it might have been nice for somebody to tell me these things twenty years ago. Nobody did, and I remember how lost I was, how I wanted somebody, apart from my mother to say "hang in there son, you can do this" I will say this to "YOU" today. "hang in there, be careful, believe in yourself and be kind to yourself. YOU can DO this" Mistakes will be made, hearts will be broken, perhaps even shattered but when push comes to shove this can be coped with and survived. Do not expect a cure, expect that things will one day get a little worse. It is a chronic disease after all.

Just equip yourself with the best tools that "YOU" possibly can get to strengthen "YOU", DMT, exercise, diet, positive mental wellbeing. This is not an impossible condition, it just takes flexibility and a change of mindset. Remember always " I CAN I WILL IDO this ms life" Take it with "YOU", learn and be strong always.

Royce

20 years along the path

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RoyceNewton profile image
RoyceNewton
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12 Replies
carolek572 profile image
carolek572CommunityAmbassador

Royce,

12+ years since diagnosis, 22+ years overall. I agree with you in that staying on a DMT, eating well, exercising, and staying positive are key elements to approaching this ‘ms’. Also, a good medical team is recommended as well. After all, you are in the ‘fight’ of your life.

Stay Strong,

Carole :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

good medical team, now that is a tough but very important one.

Morllyn profile image
Morllyn

You are so right, Flexibility is a key word in any chronic disease.

RoyceNewton profile image
RoyceNewton in reply to Morllyn

Be like bamboo my friend :-)

ahrogers profile image
ahrogers

I love your advice. I remember getting advice when I was first diagnosed to take a freeze dried brain supplement. I realize that person was just trying to help and was passing along info someone else told them but still didn't take it. We can't change the fact we have MS and there are many things I would not change it for so just do my best with what I have.

Thank you for the advice 😁

RoyceNewton profile image
RoyceNewton

Yes, just always do your best, and forgive yourself when you make a mistake

BigMar7 profile image
BigMar7

I love your advice. I’ve had MS for almost 14 years, not counting the three years it took to get diagnosed, and sure wish this chat room would have been around back then. I agree with all you said and a good neuro is the key and remember you can change if you don’t feel comfortable. I have gone through 4 or 5 since I started. 😀

RoyceNewton profile image
RoyceNewton in reply to BigMar7

I think I have had five changes all up.

kycmary profile image
kycmary

That is a great post My hubby said "we have been having the good times together now we will share the bad ones. almost 39 yrs of marriage & 24+ yrs of MS. Thank you God!!

RoyceNewton profile image
RoyceNewton in reply to kycmary

people seem to forget the better or worse bit in the marriage vows. Thankfully the good ones don't

kycmary profile image
kycmary

Mine is a good one, we went to Whites flea market today I saw a solar lite that had 2 frogs dancing a slow dance. I fell in love with it but didn't have the $15. I told the guy if I could find my husband I would be back. It took me a bit but I found him course 1 look at me & he is saying what did you find & how much do you need. He didn't have it as his friend who sold some stuff for him he hadn't seen him yet, I said I was going to talk to my friend & was ready any time he was. About 10 min or so later he came looking for me & handed me a $20.00 go get it he said. Do you know what FROG stands for? Fully Rely On God! Mary

RoyceNewton profile image
RoyceNewton in reply to kycmary

nice

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