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Myeloma UK

320 members•47 posts

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MGUS diagnosis.

Hi ,I had been diagnosed with Hypothyroidism 12 months ago.Following recent blood tests l was refered to a Haemotologist. I attended the appointment yesterday...

Hi ,I had been diagnosed with Hypothyroidism 12 months ago.Following recent bloo...

•6 months ago

High risk Multiple Myeloma

Have just been diagnosed HR Multiple Myeloma Shocked scared and start treatment on Friday Would be so grateful for advice guidance and any help ? Thank you...

Have just been diagnosed HR Multiple Myeloma Shocked scared and start treatment ...

•11 months ago

Possible Myloma

Hi everyone Very curious about this condition as I my have it, I'm on watch and wait at mo, but here is my story.. I am wondering whether i have myeloma as my...

Hi everyone Very curious about this condition as I my have it, I'm on watch and ...

•1 year ago

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MGUS and CA125

I was diagnosed with MGUS 18 years ago. I have since been diagnosed with CLL for which I am on watch and wait. As far as I am aware these two are not...

I was diagnosed with MGUS 18 years ago. I have since been diagnosed with CLL fo...

•2 years ago

Dad died multiple myeloma

Hi I've been on the forum a few weeks in that time my dad has died I really don't even know what I want from this part of the site but I'm struggling I've only...

Hi I've been on the forum a few weeks in that time my dad has died I really don'...

•3 years ago

Multiple Myeloma Study

[An email i received on 06 July 2021 from CPS Research is copied below] Multiple Myeloma Research Study Help those affected by myeloma We're delighted to...

[An email i received on 06 July 2021 from CPS Research is copied below] Multip...

•3 years ago

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Hello – Just off to harvesting

I wrote a reply to a post called newcomers, in which I explained my circumstances – long story short I am off to Sutton Marsden today for a harvesting session....

I wrote a reply to a post called newcomers, in which I explained my circumstance...

•5 years ago

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Co-amoxiclav

Hi, Presented at my local cancer ward assessment unit on Friday with temp. of 38.8, was up & down for 24hrs, sore throat, cough, cold, aching. Assessed & told...

Hi, Presented at my local cancer ward assessment unit on Friday with temp. of 38...

•5 years ago

Free light chains ?

Hi , I have been told I have free light chains in my blood and have been referred to a hematologist , I go on Tuesday , i have been waiting 3 months for the...

Hi , I have been told I have free light chains in my blood and have been referre...

•5 years ago

GP not thinking on the same lines as me?

I'm wondering if anyone can help and I'm so sorry if I'm coming across as a hypocondriac, but I'm just worried because I think there maybe a possibility I have...

I'm wondering if anyone can help and I'm so sorry if I'm coming across as a hypo...

•6 years ago

New to this site

My father has just been diagnosed with MM, He is just 65 and been told that it could be passed on to me too. I was wondering if anyone knows if I can get...

My father has just been diagnosed with MM, He is just 65 and been told that it c...

•7 years ago

New to myeloma

Hi ive been on checkups for mgus for about 3 or 4 yrs..my para protein has now gone up to a level that my doc says is likely im now no longer asymptomatic but...

Hi ive been on checkups for mgus for about 3 or 4 yrs..my para protein has now g...

•7 years ago

New to Mgus & Myeloma

Hi, My husband has just been diagnosed with Mgus & a symptomatic myeloma.. So we're just trying to get as much info, to understand, what his diagnosis means..&...

Hi, My husband has just been diagnosed with Mgus & a symptomatic myeloma.. So we...

•7 years ago

new member

Hi everyone. I was recently diagnosed with multiple myeloma through blood tests and Bence Jones test. but symptoms that first took me to the doctors were pains...

Hi everyone. I was recently diagnosed with multiple myeloma through blood tests ...

•7 years ago

Help

my auntie is currently living in france and has recently spent a couple of weeks in hospital due to severe pain in her sternum at first they thought she had a...

my auntie is currently living in france and has recently spent a couple of weeks...

•7 years ago

Smouldering Myeloma

Hi I'm Jon, I was diagnosed with Smouldering Myeloma recently. No symptoms at the moment thankfully. Had bone marrow biopsy, just regular blood tests now.

Hi I'm Jon, I was diagnosed with Smouldering Myeloma recently. No symptoms at th...

•7 years ago

Myeloma

I was told I had it on 16 may go back to the hospital next week I been get a lot of pain from October when I was got push in to a table at work hart my...

I was told I had it on 16 may go back to the hospital next week I been get a lo...

•7 years ago

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Multiple myeloma

Yo everyone I have mutiple myeloma colapse playing tennis back in may 2016 though I rip tenons and hip joint which they thought had come away from hip joint...

Yo everyone I have mutiple myeloma colapse playing tennis back in may 2016 thou...

•7 years ago

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New diagnosis

Hi there. I have just joined and hope you're all doing ok? My Mum was diagnosed just over a year ago and has been told today that she needs to start treatment...

Hi there. I have just joined and hope you're all doing ok? My Mum was diagnosed ...

•8 years ago

Discussion

Hi I'm June have myeloma can you tell me how to meet other people with myeloma for support

Hi I'm June have myeloma can you tell me how to meet other people with myeloma f...

•8 years ago

Ithing

Does anyone have any tips for a terrible rash which is bleeding. I have tried various creams and Anti Histamines without any success?

Does anyone have any tips for a terrible rash which is bleeding. I have tried va...

•8 years ago

Myeloma UK launches MUK Eleven

Some good news today - we've just launched our clinical trial MUK eleven which will open to recruitment imminently. This trial is the first of its kind and...

Some good news today - we've just launched our clinical trial MUK eleven which w...

•8 years ago

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TREATMENT UPDATE: Daratumumab (also known as Darzalex®) recommended across Europe in new combinations for myeloma patients.

The Committee of Human Medicinal Products in Europe is recommending that daratumumab (also known as Darzalex®) has its licence extended to include combination...

The Committee of Human Medicinal Products in Europe is recommending that daratum...

•8 years ago

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Are you affected by myeloma and fatigue?

Do you have fatigue or live with someone who does? Comment below with how fatigue feels to you and if you have any tips for living with it. Your words could...

Do you have fatigue or live with someone who does? Comment below with how fatigu...

•8 years ago

Myeloma Infodays - 2017 dates launched

Hi everyone - Myeloma UK has launched the dates for the 2017 Patient and Family Infodays. Infodays give you the chance to learn more about myeloma, the latest...

Hi everyone - Myeloma UK has launched the dates for the 2017 Patient and Family ...

•8 years ago

SMC say “no” to Kyprolis® and Darzalex® for myeloma patients in Scotland

Scotland's drug approval body has decided not to recommend both Kyprolis® (carfilzomib) and Darzalax® (daratumumab) for myeloma patients. Myeloma UK made a...

Scotland's drug approval body has decided not to recommend both Kyprolis® (carfi...

•8 years ago

Pincushion

New record! A needle in my arm 7 times today! 5 failures to find the vein, 1 cannula, 1 extra blood test for research, 3 apologetic nurses. My veins see the...

New record! A needle in my arm 7 times today! 5 failures to find the vein, 1 can...

•8 years ago

Hi everyone

Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long...

Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomid...

•8 years ago

Never heard of Myeloma until my mother got diagnosed!

My mother had been having back pain of weeks, months. Kept going to the doctors. I think they were putting it down to her age. She is only 70!!! They were...

My mother had been having back pain of weeks, months. Kept going to the doctors....

•8 years ago

Welcome to our new members

A big welcome to our new members who found our new community over the last few days. Come introduce yourself and what brings you to our HealthUnlocked. Take a...

A big welcome to our new members who found our new community over the last few d...

•8 years ago

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