Hi , I have been told I have free light chains in my blood and have been referred to a hematologist , I go on Tuesday , i have been waiting 3 months for the appointment and so assumed it can't be that serious but reading about free light chains it talks about multiple myeloma , anybody else diagnosed with this after free light chains showing in blood , thankyou
Free light chains ?: Hi , I have been told I have... - Myeloma UK
Free light chains ?
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Buffy14
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20 Replies
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Hi Buffy14, I’m not absolutely certain and I wouldn’t want to mislead you in any way. I know my mum had a serum free light chain test in one of many tests that determined a diagnosis of multiple myeloma, but it may well be something entirely different with yourself. I think the best thing to do would be to try not to be too concerned, when you see the haematologist they will be able to answer any questions you have, and if they aren’t rushing you anywhere that’s usually a good sign — my mum was in hospital straight away . Hopefully other people on here may be able to offer you more information. In the mean time, if there’s anything you’d like to talk about feel free to ask. Take care x
Buffy14• in reply to
Thankyou for your reply , I will find out tomorrow x
Evening Buffy, I have just seen this post & was wondering how your appointment went?? I have multiple myeloma & have never heard about the free light thing you are talking about.? Would just like to say to you if you have MM you would know about it, the pain is horrendous until diagnosis & I don’t see you mentioning pain! So I hope all is well & if not there’s people like me on here to answer any questions you have. Take care
Hi thanks for your reply , my appointment went well the doctor said she doesn't think the protein is cancerous but would have to check it out and ordered more blood tests and gave me another appointment for 6 weeks time and said I will probably be seen for check ups by the haematology department from now on . As for pain i have lupus ( SLE ) which does cause pain in my joints in varying degrees and it is in my kidneys , also have osteoporosis , have had two large blood clots and an acoustic neuroma , she asked me if I get pain in my bones and lots of other questions but said she isn't worried which is good .
That all points to you not having MM which is great news for you. The fact that you’re appt is 6 weeks away shows a lack of worry or haste from the Drs which again, is a great sign.
Keep well & good luck
• in reply toBuffy14
Hi there Buffy, I would be interested what your readings were. I have been having all sorts of tests after being diagnosed with underactive thyroid. I also have low cortisol which I thought was being investigated for adrenal insufficiency and/or addisons disease however I have just noticed on my record the following which has concerned me. I am awaiting to return to the GP to discuss further but in them meantime any thoughts are appreciated?
KAPPA / LAMBDA LIGHT CHAIN RATIO: Reading 1.79: Range 0.87 - 1.45 (Abnormal)
LAMBDA LIGHT CHAN LEVEL: Reading 9.18: Range 9.8 - 22.6 (Abnormal)
KAPPA LIGHT CHAIN LEVEL: Reading 16.41: Range 9.6 - 21.6 (Normal)
Buffy14• in reply to
Hi hypo64 ,
My results on the letter from my renal consultant to my GP were
Free kappa Light chains 890.9mg/L
Free Lamba light chains 26.5mg/L
Kappa Lamba ratio 36.6
My readings seem really high compared to yours I wonder if they have been tested in a different way , I am confused , the heamatologist said she didn't think it was cancer but said I would have to be monitored by heamatologist from now on . The renal consultant in his letter to the gp was talking about the magnitude of the results. I will just have to see what the heamatologist says when I go back on the 19th November , I see my renal consultant on the 11th November so will see what he has to say , he rang me to say I want you to see the haematologist for a second opinion , he didn't say what the first opinion was , that's what I will be asking him .
Buffy
• in reply toBuffy14
Good luck and hope you get some answers and the correct treatment as a result. I think it may not be a good idea to compare each other's results because also there could well be many factors involved and other blood tests too.
Buffy14• in reply to
Hi , I don't know why they have put that your Lambda light chain level is Abnormal because it is in the normal range ,
Buffy
• in reply toBuffy14
I have read my LAMBDA range as being under/low at 9.18 as the range starts at 9.8. I assume that is why it is abnormal as it is out of range? Guessing here!
Buffy14• in reply to
Ah right could be I took it to mean 18 but you could be right , these things are too difficult to work out and different labs use different methods , thanks for your reply I hope you get all the answers you need from the various tests you are having x
How are you? I have abnormally low kappa light chain and my KL ratio is low and I am waiting to see dr. I am now where you are this time last year. Wondering if I have MM.
Hi thanks for your reply , I am quite worried at the moment as Dr rang me a couple of weeks ago saying that my kappa light chain level has gone up to over 1000 and my kappa / lambda ratio is now 39.9 my next blood test was due in six months and she's now changed that to three months , didn't really say much apart from she didn't want to leave it 6 months for my next check . I had a bone marrow biopsy which showed 5% plasma cells with some neoplasms , my doctor said that when plasma cells go higher than 10% that's when it becomes a worry and when the kappa/ lambda ratio gets to 100 or more , I have been diagnosed with kappa light chain MGUS . I don't really know much about low light chain results , have they mentioned multiple myeloma ? I thought it was high results that caused MM but I have no idea at all I'm afraid , have you not spoken to anyone at all ? When do you see your doctor , are you seeing your doctor in person or will it be a telephone consultation , hope you get some answers soon ,Take care
Buffy
I see my rheumatologist Assistant on Wednesday am. I will let you know what the outcome of the visit is. Where do you live?
Oh good hopefully she will explain it , do you have an autoimmune condition ? I have lupus , i live in Chorley LancashireBuffy
Hi, I was wondering how you got on with your rheumatology assistant , did you get any answers ?
No. She said it was nothing to worry about. She is a PA.
That's good news .
Yes, I have Sjögrens, Hashimoto’s and Fibromyalgia. I live in the states. I am glad your doctor is not waiting 6 months to see you.