Raised platelets ec

[glyndale]

I have received very good information from people off here but am still worried about secondary thrombocytosis which could be related to cancer . I dont see the haematologist for 3 months so the info on here has helped.

[Anag]

I sinylg,

I’ve never heard of secondary thrombocytosis and i will read up on it.

I found this page:

msdmanuals.com/home/blood-d...

[glyndale in reply to Anag]

Thats very useful ,thank you for taking the time to find it .I havent been diagnosed as yet and dont seem to have any other symptoms apart from tiredness.will have to see what the haematologist says in 3 months .Thanks again much appreciated.

[hunter5582]

Having to wait three months to see a hematologist is appalling. I hope you have checked to see that this doc actually has expertise with MPNs. Many docs, even hemo-docs, do not really know much about MPNs. It would be terrible if you had to wait that long only to see a doc who really cannot provide you with the level of care you deserve. Here is a list of patient-recommended docs with MPN expertise mpnforum.com/list-hem/ . I found it was worth travelling and even paying more out-of-pocket to see a doc with the right expertise. There are reasons you could be experiencing thrombocytosis other than Essential Thrombocythemia. That will be part of the diagnostic assessment. Reactive thrombocytosis at a certain level can be he body's natural response to illness or injury. I hope you get your answers sooner than three months.

[glyndale in reply to hunter5582]

Thank you for your concern , i will see if i can get an earlier appointment .

[Wyebird]

I was told I had essential thrombocytosis. ( same as thromboycemia)

Which means you have an infection in your body somewhere. Hence lots of tests to find it. ( high platelets due to infection is secondary thromboycemia). It worked out I had the mutated gene . Which means I had primary ET.

Hope this helps.

[glyndale in reply to Wyebird]

Thank you for your reply hopefully i will have some answers soon.