Raised platelets

[glyndale]

I recently had a routine blood test and my platelets were 830 so my gp has referred me to a haematologist. I am very worried after reading about raised platelets. Can anyone help.

[Cja1956]

Your gp is doing the right thing. You definitely need to see what’s going with your platelets and get a proper diagnosis. If you have an mpn, there are several treatments available and you will start to feel better. It’s a life-long illness but manageable. Good luck and keep us posted.

[glyndale in reply to Cja1956]

I havent been diagnosed yet but when i read up on raised platelets they mention cancer,so am quite worried.Thanks for your reply much appreciated .

[Cja1956 in reply to glyndale]

Yes, MPN’s are a type of chronic blood cancer. People can live with it 20 to 30 years if properly treated. I was diagnosed over 11 years ago and I lead a pretty normal life.

[glyndale in reply to Cja1956]

Oh thats good glad you are ok .Thank you.

[Misty-3]

Hello

I initially also have high platelets found during a routine blood test. My GP explained high platelets as can be primary or secondary. I was hoping that it was secondary for me, that is high platelets because of another cause like bleeding somewhere or infection which triggers the bone marrow to produce more platelets to combat this cause. It becomes primary when the bone marrow itself is not normally producing the right amount of platelets and there is no other cause found to trigger the excess production. So my GP referred me to a Haematologist. I underwent a more detailed blood test and some other tests to check other vital organs. Nothing wrong with my other systems but my blood results came positive of the mutation, and so I was diagnosed with MPN.

But in short, having high platelets does not necessarily mean that you have MPN.

So keep hoping and be positive. And will pray for you...

Looking at this forum, and the experiences of MPN are quite encouraging and has given me that positivity in dealing with this disorder...

Hope everything goes well for you.

[glyndale in reply to Misty-3]

H

[glyndale in reply to glyndale]

Hello i havent been properly diagnosed as yet and am concerned about secondary thrombocytosis in case it is something serious, so will just have to wait and see.Thank you for your reply and kind comments,much appreciated.

[hunter5582]

I was diagnosed with Essential Thrombocythemia with platelet levels in the mid 800s over 30 years ago. The ET progressed into Polycythemia about 6 years ago. Despite this, I have never had any thrombosis or other serious consequences from the MPN. Most of the time, I have been on an aspirin-only regimen. Mild splenomegaly and Stage 1 hypertension are the most I have ever experienced from the MPN. The hypertension abated after I started the phlebotomies and my spleen size has come down as well. please be assured that the majority of folks with ET will live a normal life span and symptoms might affect quality of life at times, but can be managed. Finding a hematologist who is experiences in dealing with MPNs is very important. Many docs, even hematologists, do not have the experience/knowledge needed to provide optimal treatment. Here is a list of patient-recommended docs with the KSAs you need mpnforum.com/list-hem/ . Even if one is not close to you, it is worth the time and effort to travel for at least an occasional consultation with an MPN-expert. All the best to you.

[glyndale in reply to hunter5582]

Hello thank you for the information and i am glad you are doing well .i am waiting to see a haematologist so should have some answers soon.Thanks again for your reply and take care .