thoughts on anxiety and raised platelets

[Carthe]

my haematologist said he doesn’t think there is a link - mine are 465 and have ringing in ears but also suffer from anxiety and stress. Could this impact it … he wants me to test for ET?

[Mostew]

mind and body work together.

Tests will confirm or rule out ET . Then ask for cause of ear problems to be looked at

Meanwhile try and eat well and do things that calm you .

[Anag]

definitely test for ET. None of my doctors caught this until I had my third light stroke (TIA) seven years after ET had started and I was at 823. That threw me into shock and five days later, my thrombocytes, were at 927! I had heavy legs ringing in my ears. A leaky gut brain fog, histamine, intolerance, bloating, fatty, liver, depression, eczema, hair loss, low pressure glaucoma in the first stages Hashimoto. Since ET treatment and cleaning up my body and balancing my food, nutrients, eating an immaculate diet, all that is gone and hashimoto is 60% better. Now I’m getting rid of early trauma which is another huge driver of all illnesses.

Yes, stress impacts the whole body unbelievably! It impacts the gut which is the centre of health and every single cell. It weakens our immune system, depletes us of nutrients, and causes inflammation throughout. Please do everything possible to lower inflammation through supplements, meditation, tapping, breathing, absolutely anything that can help. It’s not worth it. let go of whatever is bothering you. Kick the tiger that is chasing you in the face and rid yourself of the poisonous people in your life. 🙂

I wish you a proper diagnosis and healing.

Anag

[Bluetop]

I would follow Docs advice -useful to know if you have ET and clearly high platelets are one indicator. I wish my doc had picked up on my high platelets earlier.

[Carthe in reply to Bluetop]

thanks Bluetooth -interested to know your ‘story’ what were you platelets at diagnosis? X

[Bluetop in reply to Carthe]

I have PV rather than ET. My platelets had been climbing for 10 years before diagnosis. They had increased from 480 (a blood test for an unrelated issue) to 1200 10 years later at diagnosis. After a couple of venesections I was put onto hydroxycarbomide which has done a good job at controlling them for the last 7 years.

[Carthe in reply to Bluetop]

thanks I’m really confused as to the difference between Pv or et? Can you help? Is it something in the blood results?

[Bluetop in reply to Carthe]

There are some standard diagnostic indicators for all of the MPNs but one of the criteria for PV is higher red blood counts (but other counts can be high too). Have you had a look at the MPNVoice website ?-look under 'About MPNs'. This is such a good base for accurate information on these blood conditions and one you can rely on. I am sure you want to find out as much as you can whilst you await your diagnosis as to whether or not you have an MPN. Good luck

[Mirror368]

My platelets rose slowly over several years. When they reached 621 I was referred to a hematologist. She did extensive labs and a bone marrow biopsy. I have ET with JAK 2 mutation. My platelets were still in the 600s after tests.

I started taking 500 mg Hydroxyurea daily and platelets lowered to low 500s. My goal is 450 or lower. Since I take a blood thinner for AFib I do not have to take low dose aspirin.

I had headache issues taking HU so switched to 500 mg every other day.

I believe it is a good thing to follow your doctor’s advice.

Eileen

[Carthe in reply to Mirror368]

thanks Eileen was it just your platelets? Did you RBCs or haemaocrits ever raised at all?

[Mirror368 in reply to Carthe]

Only my platelets were raised.