Cindy12: I have just taken the courage to join... - MPN Voice

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Cindy12

Cindy12 profile image
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I have just taken the courage to join Health Unlocked! I was diagnosed with ET at the age of 81 and am still here at 86 thanks to Hydroxycarbamide! I hope I never have to have another BMB as it was agony both during the procedure and for several days afterwards! I have been interested in reading about your experiences. Thanks for sharing them.

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Cindy12
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h2ogal profile image
h2ogal

Hi Cindy,

Welcome to the club. I have recently joined myself and very much enjoy having a place that I can turn to when I need some support or questions answered. Glad to hear a positive hydroxy shout out.

May your blood draws always be painless

harleydavidson profile image
harleydavidson

Hi Cindy. Sorry to hear that your BMB was so painful, they are horrible procedures. Welcome to the forum, I hope that we can be of help. Take care. Mel x

MPort profile image
MPort

Welcome to this forum Cindy. I hope you find it helpful. I found 13 years ago that as I learnt more from forums like this the more I stopped worrying. Knowledge and information that I didn't necessarily need came in handy later when things changed. It pays to be informed when we have rare diseases. I have PV so I have different needs to you but ask your questions, there is always someone who knows something.

Good luck. Mairead

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