Hello all,I was wondering if anyone is going to this conference which I was invited to in London? This is run by Sanius Health who supply the MPN smart watch for monitoring our MPN. I have the watch but was not sure whether to go as it sounds interesting? Many thanks.
Edit (16/03) - Hi everyone,
Thanks for your replies. I have decided to go along and just booked. Look forward to meeting some of you there hopefully. Cheers.
I attended last year and found it thought provoking. It involved the wider haematology field including patients, carers, NHS clinicians, managers, GPs, etc. It pulled me out from my Mpn bubble and, for me, was an all round eye opener.
Although I see Claire Harrison will be on the discussion panel again I don’t expect any detailed coverage of Mpns during the day.
It was after learning more about the My Mpn Voice app during a coffee break at that event last year that I later registered for the app and wearable too. I’ve booked to attend again this year and I imagine other MPNers will be noticeable by their Sanius sponsored arm ware!
also booked in though I signed up for the app too late to get the watch
Good - hope to be able to meet up there. My name is Lisa.
Like the sound of the arm wear! Tho at the moment I’m sporting an alarm watch that I can use to contact 999 if I need to: I live on my own in a country area. We’ll have to work out how to identify each other. 😆
Glad you are going again and hope to see you there. My name is Lisa.
I am not able to attend but yes it sounds very interesting please do post any news if you are able to attend.Thank you.
looks v interesting- can you post details of how to apply, and where it is? Many thanks.
I have registered now. Here is the linkpatientcongress.com/
I’ll see if I can get there. Looks like a good day. I was intrigued to see that its happening at the QE11 centre in Westminster: I drafted their hiring contract conditions in the 80’s when I was working for the Civil Service. I wouldn’t be surprised if they’re still using them….
just registered myself.
Fabulous - look forward to seeing you there. My name is Lisa so hopefully we can meet up with the others too. See you there.
I’m Helen in real life.
Yes I am also registered .PV diagnosed last year and have been following MPN Voice for advice and support.
Hi Hilary, glad you are going too. I hope to be able to meet up there. Lisa
I'll be going. Just over 1 year into mpn and will be good to get others experiences in their first year.
Great look forward to meeting you there. It should be a good day. Lisa
Might need to leave early, as a whole day in London could be too much for me in terms of energy.
I remember a patient event that had a session on ‘fatigue’ first thing in the morning at ?9.00am. Didn’t make it.
Excited to be Meeting UK MPN folks in London
