I have been following this forum for a year now but have only just plucked up the courage to post a comment.
I was diagnosed with ET, CALR positive in Jan 2016 when I was 47 and it appears that my platelets had been steadily rising since 2011. I am not in the high risk category but because I was symptomatic with chronic headaches the haematologist put me on aspirin and Hydroxycarbamide. I am currently on 1000g a day and my platelets are now stable around 370 with no more debilitating headaches! This forum has been great in helping me understand my illness but also in getting me through the bad days. I was previously a healthy person who took no tablets and I found it quite hard at first to get my head round the fact that this illness was here to stay and I would need to adjust to living with it. Your posts have helped with this a lot so a BIG THANK YOU to you all.
My question is regarding low white cell counts which I have on the HU - I constantly feel very fatigued and pick up all viruses going which will leave me feeling wiped out for days. Anyone have any tips for this?
Many thanks in advance