Side affects or something else ? : Hi all , i have... - MPN Voice

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Side affects or something else ?

10 Replies

Hi all , i have had yet again Second time in 3 weeks a gut upset and very tired ,all my blood tests came back okay , shows no anemia and blood infection back to normal , i dont get any answers from hospital that its in any way side affects of this H U ,i have been taking it now for 4 month with dose going up gradual. to now 7 days and platelets good at 406 im getting headaches which her not from mpn or treatment apparently and abdominal discomfort from time to time have had ultra scan and that all normal .👍😞 regards Holly

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10 Replies
Helen1952 profile image
Helen1952

Hi Holly

It sounds like the HU is working well for you .

Just a thought are you using enteric coated aspirin ? If not it's really worth a try as it's much better for your stomach xx

in reply toHelen1952

Thank you Helen , i did ask Gp and heam about that asprin , they seem to think it doesnt make any differnce . im taking 30 mg now of Lansanzoprol to protect stomach , which they say shoukd counteract the harming affects from asprin xx

jane13 profile image
jane13 in reply to

made a very big difference to me taking enteric coated aspirin and saved me having to take yet another drug to protect stomach!

in reply tojane13

Hi Jane yes will try the coated asprin thank you x

piggie50 profile image
piggie50 in reply to

Hi Holly,

It may be worth asking you Dr/Heam about Clopidogrel. I had a major stomach bleed a few years ago and my Heam changed me from aspirin to Clopidogrel as he said it's much kinder on the stomach. I also take Lansoprozole - 15 mg, for hiatus hernia. Most Drs stick to aspirin as it's cheaper!

Best regards

Judy x

in reply topiggie50

Hi Judy , yes i did ask about alternative last year ,my Gp said they all affect stomach, i will ask again in meantime will take coated asprin ,yes i know nhs is using alot of cheaper alternatives unless we push !! xx

rmorritt profile image
rmorritt

Hi Holly, I take HU 1500 a day, and have weird gut pain and headaches. I am told too that its not related, I dont think they know because I am on a facebook group for ET and hear alot of same complaints.

Hi rmorritt, yes i agree ,yet if we read side affects of HU it will say headaches and also stomach discomfort ! best wishes Holly

ourlife profile image
ourlife

Hi Holly,

I had bad tummy trouble on HU, usually worse when I over did things, I have recently gone back on HU as I suffered from the mental side effects of Peg and low and behold the tummy troubles returnd instantly, I am now on the liquid form ( which tastes disgusting) and things are better in that department, If everything else is ok I would say HU is the cause of your problems.

Have fun Ourlife

Hi Ourlife , thank you . yuk i cant begin to imagine what HU be like in liquid form . yes im keeping a diary daily of what i eat to see if there is any correlations to upsets in way of food . i do get stressed at times also which i guess dosent help

best wishes Holly

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