I was diagnosed with ET in September last year. After being ignored for over 7 years from my medical care. I have never really thought or looked into it, as at the time I was ill with another illness & told not to.
Now I have that sorted I have been looking into ET. I dont understand alot of it, I am looking forward to attending a patients forums in Manchester.
Its also changed my life the company I work for has made me change units as I worked in a challenge unit. This upset me as I get treated different which I hate.
My blood platelets have gone down a lot since I started the gym & yoga once a week.
Me and my boyfriend havent talking or wanted children but since looking into this condition its made us want a child. Due to being told we have to tell everyone it has to be planned and its up to the professional if we can have one or not. This makes me annoyed.
Has anyone else been told this? Or feels the same?