These are all under control with various drugs and even a sleeping pill to help at nights!
Not that it’s too noisy at night, but it never quite gets dark but they even cover this as a volunteer came round at the beginning and gave me a sleep pack which consisted of earplugs and a face mask!
I have had 4 bags of platelets and other blood products (all irradiated) transfused so far.
One injection of growth factor yesterday.
Have seen my blood levels drop after the chemo and a slow rise post transplant. Bloods are taken every morning just before 6am and results come in @10.05 on the dot!
Three days ago hair started falling out, but having been bald for many years, it’s not an issue, other than my t shirt being covered by what looks like snow!
Electric shaver came out and removed the remnants….Wow, it’s been many a year without a moustache🥸
Just a waiting game now and see the drs on their rounds to see what the next stage will bring.
Further updates to come
Keep the faith and we will fight this separately and together.
G.
🤓
Written by
LFCLove
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Excellent news. Just prepping my home before I get admitted. I assume you have some blood counts. Did you have reduced intensity or Myeloblative?. I'm down for reduced intensity with Fludarabine and radiation.
My chemo consisted of three types of chemicals, Fludarabine (Fludara), Melphalan and Alemtuzumab (Campath) over four days. Blood counts are still low but moving in the right direction..
Best wishes to you on your journey and may you be back home very soon.
Well done ! Sounds like you're being well looked after and everything is going in the right direction. Fingers crossed those counts creep up over the coming weeks , , I recall it all seemed a tad surreal to me waiting on my daily results because I felt ok. Chris
congratulations! Very good to see you are getting better day by day. I cannot imagine how much courage this takes. Your sense of humor is also showing. Thanks for helping me start a new day smiling. Bless you!
I'm glad it made you smile. I wouldn't say it's courage, it's selfishness to stay here a while longer to enjoy my family (5 grandsons)!!Laughter and smiling are the best medicine...
It’s not great, appetite is knocked sideways but I’d say I’m eating at least 60% of all food offered. It is hard though as food is a continuous thought whilst here as its part of a regime which I understand but does not help.
As you finish a meal, you are given the choice for the next one 🤦🏻♂️
It's always a small sense of relief when I see your updates. Glad to hear things are going well. I'm also curious to know how's the eating going? Are you loosing weight?
Keep up the good work mate, looking forward to update 8!
Hi, as I said in reply above eating is only about 60%. Knocks your appetite sideways. Bonus is that my weight has been pretty consistent, so that’s a bonus.
Great to get your updates. Campaign bulletins from the front! Am sure they will be invaluable to anyone who might be embarking on a SCT now or in the future. Look after yourself. Please keep us posted when you are up to it.
Hi, I hope my diary and observations will help someone, but please remember that everyone’s journey will be unique to them. It’s like a 1st time pregnant woman asking a woman with children how their pregnancy went! Some aspects will be the same but many won’t.
We are a global group of multi racial, multicultural people with something in common, we have a fight on our hands…
You’re right we have many things that match but our own path. I had reduced intensity with Fludarabine, Busulphan and Thymoglobuline-rabbit (excuse spelling) which was the gold standard 14 years ago, but these things change. I was ‘flattened’ three days before and three days after the cells arrived, and then steadily improved. In the end I had 9-10 platelets and 30 packs of hgb over several weeks. I lost 1.5 stone in weight but regained most of it!
You are heading in the right direction. Keep it up.
Hi, it’s good to hear how you are progressing. I am now on day +393, I have kept a diary, noting my progress. I looked back to my day +15, I didn’t have diarrhoea, but terrible sickness & really struggled to eat, I was given anti-sickness meds which did help - it does get better. I remember well the nurses coming in at 5.30 am with the blood testing kits also the fantastic care I had from the medical staff
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start of my SCT journey 
