Hi all the amazing people on this forum
I am 41, have ET that has progressed to PV as well now.
I was on aspirin alone for about 12 years, then when my platelets hit 1100 my hematologist advised to start additional treatments. I tried Pegasys first, which to my greatest disappointment I didn't tolerate at all. I have been on Hydrea for over a year now (500 mg per day), but struggle with shortness of breath and extreme fatigue. I saw my specialist last week, who suggested I start on Rux and aspirin instead.
He also prescribed anti shingles medication to be taken at the same time.
I am nervous, after my experience with interferon and Hydrea.
I think many people are taking Rux already. Does anybody have any advice about it ?
Thank you very much.
Mary