Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi...
He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to POST the message below on MATES, and so I Posted here again for Warwick...
Thanks for your well wishes. Sorry for the delay getting back to you but i just worked out how to do this on my phone. I have no energy or concentration to turn on the computer. Today is plus8 ie 8 days post transplant. The next week is the toughest only 2 rounds of chemo to go. Around day 14 engraftment may commence ie the new stem cells start to grow and make blood in my cleared marrow space. Engraftment can take a bit longer with myelofibrosis patients due to the scar tissue in the marrow space. The picture steve posted was me having platelets which is such a strange thing to think when my platelets liked to be around 900 to 1000 or more. The current chemo methotrexate is cleaning out any old marrow cells that are just breathing or were hiding for the fist 2 weeks of chemo blitz. The immunosppresants are ensuring my new stem cells are cruising through my system unopposed. My White cells are 0 platelets are 10 and haemoglobin was 59 but i had a bag of blood this morning which will put a spring in my shuffle.
The medical team here at Westmead are unbelievable can not speak highly enough of them.
I dont have the TV on but have not missed it at all. I have not streamed any movies etc and have not read anything for 2 weeks. Listening to the radio is entertainment enough. im never bored as the nurses are contantlly changing iv lines giving me tablets and care. It takes a colussal effort to keep a human alive with no marrow
best wishes
Warwick
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socrates_8
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Wow you sound as if you are fighting the good fight, I can remember when Jedi reject (Chris) went through something very similar, we all followed him and his long road to recovery, and he certainly came through it which you will as well, these are such strange times at the moment, so it’s good to hear that you are doing alright and getting the best treatment.Keep the faith, and keep us posted when you feel up to it.
Please forward this to Warwick, My thoughts, hopes and heart warming hugs go to you. You mustn’t reply to this as I know you need every bit of strength. I just want you to know that I’m thinking about you. Please find the strength to do every thing that is needed of you to make this a huge success.
Thanks for your thoughts... Warwick will, and he wants to reply when he can but he is technically challenged by computers, and that's why I provided a LINK above so that you & others might reply to him via MATES...
But will be sure to let him know in any event that the support from MPN Voice is as always...
Hello Warwick ...I don’t know anything about stem cell transplant ... other than they have a high success rating ...you are a brave person ...I send you sincere wishes for your full recovery ,love and best wishes ..Lainie 😘
Warwick recently Posted the following message to everyone:
Post by Warwick » Wed Mar 03, 2021 8:49 pm
Hello Everyone
I reached another milestone on Monday with my last Chemo dose. Now its a matter of topping up my platelets and red cells and keeping up the cyclosporin which is an immunosuppressive drug. They are also giving me panadol, endone, for headaches anti nasuea drugs drugs to protect my liver and kidneys antireflux drugs and my continual chocolate milkshake.
Its now a wait till the new cells engraft. This is easy to detect because the chemo has destroyed my marrow, my white cell count had been at zero since 17/2/21and once engraftment occurs and I start making my new blood my white cell counts will rise. This could happen ad early ss this Thursday but we are praying thst it be by the end of the weekend.
Steve, please let Warwick know I am following his journey and I wish this brave soul a speedy and complete recovery. All of us on MPN are pulling him and know it is a long and hard battle. Sending prayers and hugs to Warwick!!!
Very best wishes Warwick, so great you have a positive attitude, this is what gets you through. I remember having to teach myself to speak and read again but it all happened with determination ( my husband would say pigheaded)🤪. Good luck to you I’m sure you’re gonna be fine. All the best xxx
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Life beyond Myelofibrosis
SCT journey update No.3
