Picked up Hervoni.

[Phillipaussie]

Here we go,I start in the morning,do my best to post for others,first person in 22 years to present with Porphyria on top of chronic??? Hep C. Viral load 2040.850./😰hope to be able to dismiss any fears or reluctance that haunt us all,your day will come as mine did, soon we can all put this behind us.Goodluck everyone,

[MAS_Nurse]

Hi Phillipaussie, and thank you for your post. I would like to wish you all the very best with your treatment. Take care.

[Phillipaussie in reply to MAS_Nurse]

Thank-you,

[Hidden]

The British liver trust have a forum on here that might provide you with some valuable support. All the best with your treatment x

[Phillipaussie in reply to Hidden]

Thanks.

[Phillipaussie in reply to Hidden]

Cheers for that, I started out on the liver site,somehow ended up here too,with is good because here at least I can get some support,the team allocated to me have made themselves look good and abandoned me,I will be taking it up with Pals when I am better as they left me in crisis when I needed them the most,at my sickest my care coordinator suggested I go to the gym a few times a week,I'm almost bed bound now as was I when I pleaded for help,had 3 different diagnosis but totally dismissed by so called community wellbeing team.My care coordinator is an absolute disgrace to the social care sector, full of excuses why she is never available and dismissive when she is,they have people's life's in their hands but think they can act all knowing,well this will all pan out in some lawyers office down the track cos No social worker with an overenthusiastic ego has the right to play God with someone's care.

Wow, got it all out there,I work in a very similar sector and know I have been totally discriminated against due to my health with has affected my mental health.

My main diagnosis and another have an impact on my mental health,bear that in mind it does not stop me having rights.putting clearly untrained social worker in charge of chronicly ill people and suggesting they go to a gym to get better.seriously,beggars belief,despite her poisonous lip service at best. I will get thru this,they want to hope I don't because I will put every ounce of energy I have to set the record straight,so no one else has to suffer the indignity I have had to suffer.

Onwards and upwards,thanks for your tip,I appreciate it very much.