I'm Susan, I have BPD, GAD, depression, Aspergers, Diabetes type 1, Diabetic Retinopathy, Diabetic Neuropathy, Fibromyalgia, Osteo-arthritis, IBS, Gluten Intolerance and COPD.
Life is hard. I need friends. But struggle with this. Time to step out of the boat...
Hi, first of all I'm sorry to see you have multiple ailments, it must be a daily ordeal. you look so young and I imagine you're very brave. Just to let you know there's someone here sympathising and showing support, best wishes xx
Thanks for your reply. I'm 39 but I've been diagnosed with most if them for a long time now. I don't feel brave, I just get on with it, I've no choice really. I have good days and I have bad days. And then I have really bad days were I can't even get out of bed. I work part time and sometimes I get out of work and I just cry from the pain. But if I don't work my depression gets so bad I just want to die, so I push through.
Anyway thanks for taking the time to respond, I appreciate it.
xxx
How did they ever figure that out? If you're having a bad day can you tell which illness is causing it? Do symptoms overlap? What are your daily circumstances like ? I'm not being nosey I'm trying to understand, and I look forward to hearing from you. Pam
Hi, I'm not sure which illnesses your trying to figure out lol. They were all diagnosed separately. My depression when I was 11 after a suicide attempt, then my IBS at 15. My diabetes at 19, My fibromyalgia at 24 then osteoarthritis, COPD, GAD and gluten intolerance over the next couple of years. I was 32 when they diagnosed diabetic neuropathy and retinopathy. I didn't get a diagnosed of Aspergers Syndrome until I was 34 but I knew I had it from when my daughter was diagnosed at 3 and I was 22. Lastly I was diagnosed with BPD last year at 38 after many year of being involved with mental health services and even being sectioned 10 years ago.
It's been a long hard struggle, but I'm finally starting to get the help and support I need I struggled with addiction for many years as a coping mechanism but now I'm completely clean if everything including cigarettes for 5 years.
Yes sometimes the illnesses overlap or one sets of another but most of the time I can tell them apart as they produce different types of pain in different places.
I take each day as it comes, usually there is always one or other thing affecting me. Today I'm in pain from my fibro and my frozen shoulder (forgot to mention that). My pain killers are just not cutting it I'm on 30/500 co-codamol, and nortriptyline for pain. I have to work at 4pm-1am in McDonalds. It's gonna be a long hard day. I'm a Christian now and I find my faith helps me a lot.
What can I say I just try my best to get on with it as best I can. I get bullied at work by both my colleagues and the teenagers who come in. I know I'm different, I'm just not like other people, a bit weird you might say and I don't mix well with others. But it upsets me when they make fun of me.
I'm very lonely though my husband is a complete blessing. We only got married last November and he is my rock.
Hope I've answered your questions if not feel free to ask more lol.
xxx
I will probably never understand people. Why someone with the adversity in your life can be so courageous and why some with little to no difficulties can be so cruel. I want you to know I admire you and the attitude you have develop| . Pam
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Thank you, you're gonna make me cry. I find it hard to take compliments. But I appreciate them so much.
As for those meanies, we must just forgive them and move on, better not to give them the satisfaction of living on in your mind. They're not worth it.
Keep smiling even when you feel like crying, but don't be afraid to have a good cry every now and then to wash the cobwebs away 🤓 xxx
Hi Suzy, I am also a Christian and although I used to be more forgiving than I am now as I get older I have less tolerance for the cruelty and meanness people inflict on each other. If someone tries it with me or I see someone else being bullied I figure they opened the door and I'm coming in.It doesn't take much , and I never yell ...I will say 'you do know you are being a bully, why do you need to do that?' Or I might ask ' Do you really think I care about your opinion' ? Just enough to but the issue on them where it belongs and not enough to cause a fight. You usually only need to do this once. I told a bossy woman I worked with that I was feeling especially aggressive today and she simply walked away and didn't bother me again. If you aren't comfortable doing this then don't. You can always think it and make yourself feel better. I worked a shift at McDonalds for charity once. It was exhausting and confusing and the workers were nasty. I do pray and I will be asking Jesus to bless you and love you.I have had more prayers answered than not. I suspect that is true for most people. Pam
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