I have literally just found this site, im a member of LUPUS unlocked as I was diagnosed in 2005 after falling very poorly. depression is a symptom of lupus so im learning to live with it day to day (besides all the other symtoms the lovely lupus gives me!). ive been told ive P.T.G. aswell as I lost my twin sister suddenly in 2004. im still learning to accept life without her.
I would like to join and chat with you all as im finding I have bouts of dark lonely days, days when I want to shut out the world including my loved ones. I would love to chat to people who will truly understand what its like to live with depression and not be judged. I don't feel quite so alone now, thankyou for reading my blog x
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caninecrazy
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Welcome to the site,you will find many loving, supportive people on here, as I have. I know Lupus is very hard to live with as I know a young girl who has it.... not very nice at all. I am not surprised that you suffer with depression because of it as well as losing not only your sister but a twin at that. You are probably still grieving for her. Grief takes time to work through and sometimes takes longer with some people than others.No-one will judge you on here and we all know exactly how you feel as we are all there ourselves in differing degrees. Just take one day at a time, small steps and you will get there and be kind to yourself, recognise your achievements, they may not seem like much but it's all about going forward. Am rambling a bit now, haha, but welcome and keep on here. xx
Heya, welcome to the site! Everyone here will understand how you feel. We all feel exactly like you've described sometimes. Look forward to reading yr posts in future
my cousin died of Lupus. Well she had a baby, then got very ill and when she went home she died from an infection caused by a tube she used for kidney dialysis. It wasnt well known about then x
a BIG thankyou to everyone who took the time to reply. I have learnt to pace myself as I tire very easily having fatigue everyday, I do get frustrated and mourn the pre-lupus me when I had buckets of endless energy and being pain free. my twin also had lupus, my younger sister (who is also a twin! my mum had two sets!) has been diagnosed with it a year ago,my brother (her twin) has M.E. since 16 so auto-immune conditions seem to run in our family.
feeling quite tearful today,body aches but I will put on my smiley face and go to work, bills gotta be paid and my sickness record isn't good so cannot risk losing my job. I get angry as I always get told "you look so well" but all I wana say is "the wallpaper hides the mould underneath" ive just put my sunfactor 50+ on my face,neck and hands so I can brave the sunshine (I have to avoid sunlight as much as poss) and walk the shadiest route to work
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I'm just a mess..help?
please can anyone help
Be Different ♡
i dont know anymore
