Hey guys! Real quick update - not too much. Ryan saw his oncologist yesterday and she is as amazed as we are. Keytruda is treating him well and we will continue to truck on this path. He had blood work done after the appointment and we received the results this morning. Liver and kidney functions are 100% in normal limits, and even though he is iron deficient - his red blood cells continue to rise and the IV iron infusions he received seem to be working as well. No update on those counts due to it needing many weeks to show progress. Fatigue is getting better because of the low counts - our way of knowing it’s going good. Almost no pain to report - HUGE CHANGE since December. He is on month 3 since last PET scan but we decided to get one in July due to his success thus far. That means he will have 2 more Keytruda infusions under his belt by that time. His vitiligo on his hands have extended up his arms - and by the medical journals I have read - that has been consistent with a good outcome of immunotherapy. Which we see. He is doing and feeling the best he has since his last tome NED. He is OFF steroids! Took a while to wean.. but we did it as safely as we could to avoid adverse reaction and having to go back on. He is doing lovely. Pain medicine is weaning down wonderfully as well! God has been absolutely wonderful to us. We are blessed beyond belief. This roller coaster is the worst. But enjoying these moments because that’s the fuel we need in case we take another dive into the unknown. To my friends here - I hope you are well and would love to hear updates. Me and Ryan talk about you and your journeys all the time. Always in our prayers.
Love from MD