So we were able to see the neurologist early, which I’m super glad we did. His neurologist said he doesn’t believe that the MRI shows definitively a recurrence. To him, it looks more like, and is in the time line of radiation necrosis. Ryan got a large dose right after his resection of the brain tumor in September. And apparently fits the time line of those effects. He doesn’t think it has characteristics of a tumor either. The immunotherapy most likely aided in the brain swelling; which effects a decent percentage of patients. His increased seizure activity was due to the brain swelling as well. So long story short; plan is - no more radiation, no brain surgery; but to continue taking Taf/Mek which is what his oncologist suggested to take again. He does have a 1cm lesion in his abdomen lining. Mesentery. That’s the only spot the PET scan showed.
I’m sure I’m missing a ton of information. But that’s the jist.
Love to all xoxo