Scan update: Hi guys, so right to it... - Melanoma Caregivers

Melanoma Caregivers

Scan update

kellyOd profile image
10 Replies

Hi guys, so right to it - we got blood work Thursday of last week and it came back lovely except his liver enzymes were slightly elevated. (AST and ALT) luckily not enough to put a stop to treatment. Watchful eye though. He received his treatment on Monday - but before treatment he had an appointment with his oncologist who had the PET scan results in her hand. I am always FaceTimed in to these appointments because of the COVID protocol I am not allowed with him. I am so happy to report - that this time, we genuinely have a CLEAN NED scan guys. It was read by the head nuclear radiologist because of the mishaps we have had. And in detail - it shows no evidence of any avid metastatic melanoma! We are continuing with Keytruda - and his oncologist is actually opening and starting a new clinical trial and she has another treatment option under her sleeve just in case we need it. I believe the clinical trial involves Keytruda plus ipilimumab. Other trials have tried nivolumab and ipilimumab - but not Keytruda with ipilimumab. I will get details of these other treatment options and let you guys know to see if it’s something that could be useful to the community. But right now me and Ryan are over the moon with these results. I hope everyone is doing well and as always love hearing updates from you guys.

Love from MD xoxo

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kellyOd
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10 Replies
missyrand profile image
missyrandAmbassador

Outstanding news for Ryan, and with careful review by department chair of the scans following earlier debacle is good news that has reliability. Good for you both.

ClinicalTrials.gov listed this related to IPI/ Pembro (Keytruda) combo trials:

1. clinicaltrials.gov/ct2/show... Phase II Trial of open label use of Low dose Ipi with Pembro for melanoma with brain spread.

2. Research article with first 22 patients in this protocol: ascopubs.org/doi/abs/10.120...

Peace,

Missy

kellyOd profile image
kellyOd in reply tomissyrand

Ah thank you missy! I wasn’t there so I couldn’t hear great. I know that ipilimumab tends to be a lot more harsh on the body then the newer therapies. Dual therapy hasn’t worked for him in the past toxicity wise..

SGHSweethearts profile image
SGHSweethearts

Kelly,

Just Fabulous news. EnJOY everyday, what a blessing.

Michele

kellyOd profile image
kellyOd in reply toSGHSweethearts

Thank you so much it truly is a blessing. I am amazed. I have no other words ya know. I am just simply amazed.. can’t believe it

doulagirl profile image
doulagirl

Wonderful news, enjoy everyday!!!

Good news about the trial also, keep going guys, you are doing great <3

Love Dorothe

kellyOd profile image
kellyOd in reply todoulagirl

Thank you dorothe! Doing our best! He’s a warrior that’s for sure!

MeAndMom profile image
MeAndMom

Amazing, amazing news!!! Woooooo!!!!! ❤️

strawberryjam profile image
strawberryjam

This good news

made my day! So happy for you. I’m

always in awe of you and your medical

team! You all persevere and keep

Ryan well! Team Ryan !

kellyOd profile image
kellyOd in reply tostrawberryjam

Thank you! We are so grateful for our team. They are super attentive. His oncologist has a specialty in melanoma and it makes it that much better!

HSsweetheart profile image
HSsweetheart

Great news Kelly!

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