AMD patients can you help please? - Macular Society

Macular Society

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AMD patients can you help please?

tallyho profile image
2 Replies

Anyone on here with AMD that can help with this? These are lovely blokes with a heart of gold. No email or identifiable information is shared with Roche and I can vouch for that as I was in the DMO forum with FixingDad/ fixing us. The forum is just asking questions about treatments and what it’s like with AMD. They have worked with the Macular society in the past and fight for sight and other well known charities.

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tallyho profile image
tallyho
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Atlas1522 profile image
Atlas1522

I’m in the US and have been getting Eylea inj. In both eyes for about 4 yrs. it started after I was on Eliquis blood thinners for 4 months (drs. say there is no connection between blood thinners and a retinal bleed??) but I went off the blood thinners 4 yrs ago (got a Watchman for AFib) the right eye reacted quickly to the inj. but the left eye took much longer before it was dry. Both eyes have been dry for about 3 1/2 yrs. and I’m now 12-14 weeks between inj. I get scans every time I see my retina specialist. I have lost vision in the left eye but not from wet AMD but from dry AMD but the right eye has maintained good vision so I can still function normally. I hope this info is helpful.

Shimano profile image
Shimano in reply toAtlas1522

That’s really hopeful news for the rest of us atlas. Go well.

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