Stages muscles : I know I asked something about... - LUPUS UK

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Stages muscles

Lilrosie1 profile image
6 Replies

I know I asked something about muscles before but this is the second time my muscles have given out. I couldn't lift my phone my arms were shaking and my legs felt like dead weight. How Come I feel .worse than another friend ? To many questions. Not enough answer

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Lilrosie1 profile image
Lilrosie1
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6 Replies
Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK

Hi Lilrosie1,

Have you spoken to your doctor about the symptoms you are experiencing? It is advised to speak to your doctor about your symptoms as this will enable him/her to provide you with the correct advice and treatment (if required).

The joints and muscles can be affected by lupus, we published a factsheet on ‘LUPUS: The Joints and Muscles’ which you can read here: lupusuk.org.uk/wp-content/u...

It is important to bear in mind that lupus presents differently in everybody therefore, it is unlikely for two people to share the exact same experience. It is possible for people to experience periods of remission where their lupus is controlled and they feel relatively better; reducing the signs of their symptoms.

Please let us know how you get on, wishing you all the best.

Lilrosie1 profile image
Lilrosie1 in reply toChanpreet_Walia

I take hit hit showers so I can move some what

I agree. It seems as though lupus attack different people in different ways. But I do remember when my legs felt like they were made out of bricks. I had to take one step at a time and put both feet on each step and coming down each step was agony

Jbsnide profile image
Jbsnide in reply to

I can Remember times feeling exactly like what you described before my Diagnosis in 2011. I have also had a few episodes even with medication, but they were not as bad as the first onset. I take 400mg plaquenil daily. Hope you get results!

nanleighh profile image
nanleighh

When I was first diagnosed with SLE I had pretty severe weakness in my arms and legs. I could hardly lift the tea kettle to fill it with water. It took a good 8 months on hydroxy along with prednisone before the symptoms started getting better. You need to let your doctor know if these are new symptoms. I wish you all the best! Xo Nan

gg317 profile image
gg317

happens with ms patients, i hear

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