Anybody in west yorkshire?: I'm seeing my rheumy... - LUPUS UK

LUPUS UK

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Anybody in west yorkshire?

15 Replies

I'm seeing my rheumy friday for my final diagnosis :) looking forward to answers! I already know its sle just waitin for her confirmation really. Anyway is anyone here in west yorkshire? I'm in bradford and would love to make Some friends :) let me Nooo XxloubieXx

15 Replies
poodlegal profile image
poodlegal

hiya im in leeds,not far from you and my daughters family are from bradford,know it well,which hospital do you go to?? xx

mstr profile image
mstr

Hi Loubielou, Silvermyst is organising a Sheffield Meeting in March (23rd I think) check out her post as that's not too far away from you. Hope all goes well with diagnosis too:)

Adamine profile image
Adamine

Hi

I'm in west yorkshire, Huddersfield - no formal diagnosis of SLE - just UCTD, limited scleroderma, Vit B12 deff, Rynauds... Positive ANA (has been for 3 yrs) and Ro positive. I feel I do have SLE though.

Hospital have been very dismissive and uninterested - never see same Doctor twice. and the all contradict each other!!!

Have appt in March when I will be asking more questions.

Which hosp do you attend??

Would be great to meet someone local.

xx

Pickers6574 profile image
Pickers6574

Hi...I'm in Silsden (between Keighley and Skipton) currently seeing rheumatologidt at Aitedale Hospital...also got referral pending for immunologist at Jimmys in Leeds...would be great to meet up....!

poole_odyssey profile image
poole_odyssey

Hi im I bd14 if thats any help, who do you see? x

I'm in bd12 :) I attend st lukes hospital in little horton/west bowling. Could do a coffee afternoon Some point in a couple of month? Need to get answers first lol xxx

poodlegal profile image
poodlegal

i go chapel allerton hospital in leeds, when you first get dx you think your alone but seeing all the people on here who also have lupus and some in the west yorks area you realise your not alone,the other day a girl i went to school with(same age) told me she has had lupus for years and a lady up the road,i have family in a remote part of ireland and i was dreading explaining what illlness i had until my auntie piped up so and so over the hill has lupus!! xx

Delila profile image
Delila

Hi I'm in Halifax and also go to Chapel Allerton been diagnosed since I was 17 and I'm 47 now and also have APS. It's good to know others in the same position live near! Hope you get the answers you're looking for, always easier to deal with when you know what you're up against and also have others to support you x

THanks guys, rheumatolgist ruled it down to connective tissue but She wasn't sure which lol but she's fairly confident its sle and so am I tbh. Just Trying to get used to all the aches pains and tablets, learning my boundries aswell. Once I get everything sorted and I know what's going on we could all meet somewhere? LIke starbucks in bradford? Or wherever isn't mega far from my lads nursery lol Xx

lanie2013 profile image
lanie2013

Hi I've just been diagnosed with Lupus sle after nearly 2 years of being ill... its been a journey and it continues everyday.. I live in Bradford and attend St Lukes Hospital .. would really appreciate meeting others for support .. be happy to meet anywhere look forward to getting some dates and times :)

zebedee01 profile image
zebedee01

Hi everyone x I know this post is a few years old but I just came across it!

I live in Ilkley attend Airedale hospital. I would love to chat to people nearby and maybe meet up. Other people just don't understand what its like to have lupus and my daily struggle trying to hold down a job etc! xx

Diagnosed2012 profile image
Diagnosed2012 in reply tozebedee01

Hi, there's a little lupus group that meets at Chapel Allerton hospital in Leeds on the first Thurs of every month 10am to 1pm. If you go to Rheumy outpatients, they'll direct you to the room.

1953m-m profile image
1953m-m

im in bradford

in reply to1953m-m

Hi :) are you new here? I barely use this now after so long, I'm on Fb tho if you want to be friends on there? I also run a page called The Butterfly Diaries, a chronic illness blog :) I'm Loubie Smith :) close up profile picture browny black hair :)

tinkerbell12 profile image
tinkerbell12 in reply to

Hi I live in Bradford and would love to chat and organise a group that meets up???? I can't find anything near Bradford to go too . Xx thank you xx

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