Have UCTD for some years but recently consultant says now looking more like SLE, with high levels of abnormal blood tests six months ago. Blood tests checked once since then. As you know the disease fluctuates from week to week or even day to day. I was seen in the OPD last week having had three very good weeks, and been almost pain free. (most unusual). Seen for less than 3 minutes by different doctor, asked if I was OK at the moment, and then without further questioning told I was to be seen again in one year. No check blood tests carried out, but maybe not necessary ?? Pleased in a way, in fact so pleased I did not question it, but even two days later the pains were back. Am just wondering if a year is the usual length between appointments for monitoring of this
I was put on anti-malarials but they did not agree with me so am on no treatment at the moment of which they are aware.