I am just wondering if anyone else has SLE and Type 1 diabetes and if so, how do you cope with both?
I'm 27 and have SLE (been diagnosed 1 yr, mostly skin and joint involvement with photosensitivity) and type 1 very brittle diabetes (diagnosed 11 yrs) and am on an insulin pump. I'm really struggling to keep on top of my sugars because the least little thing can cause them to sky rocket and I've been having more and more episodes of ketones. I think the problem at the moment is that I'm also in a massive lupus flare currently-swollen glands, sore throats, even more pain, even more exhaustion and a lot of brain fog and confusion (more so than usual lol).
I'm under the care of a very nice diabetes nurse, but I have heard that having both is not very common, so there's not a whole lot they can tell me. My Pump is brilliant-wouldn't be without that, but I am very conscientious with my diabetes and testing loads every day but still have the massive highs and the massive lows. I'm feeling very down about my health at the mo-there's not very much I can do and feel very alone having both these conditions to contend with. I really want to try swimming, but am so scared about having the hypos when I'm in the pool it puts me off... I'm also on methotrexate and am worried about catching the lurgy from the pool!!
I'd be really interested to hear how other people cope with these 2 debilitating conditions and do you have any tips?