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Diagnoses and bladder incontinence

Firstly...i was diagnosed with Lupus via a routine blood test.....just a one off.

tests have been clear since but i have all the symptoms of lupus.....foggy spells,tiredness,sore swollen joints,gradual worsening of eye sight later in day if tired and i have been psychotic on one occasion and tired all the energy.headaches........


i suffer from bladder incontinence when i have an episode.........

firstly as bloods clear, does that mean i no longer have lupus and secondly, does anyone else suffer from bladder incontinence. i can feel im tensed up below and have to get to the bathroom very quickly or i will have an accident which often happens. its not an infection of any sort

5 Replies

also i would like to add that i have epilepsy through head trauma and scarring on the i have had seizures and am on Lamotogine and gabapentin i started taking Kelp tablets which has got rid of my fluid no swollen ankles/legs and face.


Hi. Yes i have suffered with incontinence for a few years. So bad that i gave in after all the meds and urodynamic tests that i opted for a supra pubic catheter (where they put catheter in through lower stomach) I was so tired with getting up every hour through the night and needing the loo all the time in the day along with Lupus fatigue i couldnt carry on like it. I have urge incontinence and no control over bladder. I cant get any answers as to why this has happened or if it connected to Lupus, and i am still looking for an answer. In my urologists words, bladder is knackered. I too am having probs with psychotic episodes and am waiting to see our local mental health team so i know where your'e coming from. I'ts a living hell isn't it. Hope things get better for u and youre in my thoughts.

Regards caz59 x


Hi Caz59.......i hope you get sorted hun...but i will say, whilst i was being cared for by mental health team...they have to administer all meds. they wouldnt order in my epilepsy meds in advance so i had to go without at times if my own supplies ran out.

i found the whole experiance to be my biggest nightmare and hate my husband for allowing them to treat me. the doctors were cruel and i was forced to take psychotic meds which made me so aniemic i couldnt breath properly...and when in a medical hospital they detoxed me of all meds and ordered that i be taken off psychotic meds as it wasnt a mental problem,just a fit that left me disoriantated or reaction to epilepsy meds......i never want to be involved with a mental health team again for as long as i live.

however good luck to you and i hope you get sorted hun....if you ever want to talk im here xx


Hi sharonleane. Thanx for kind offer to talk. Got appontment thru for MH team, end of Sept. See what happens then. Dont think i will have to be an in patient, i hope not anyway. Also got letter from Jobcentre plus, got to be assessed for ESA, no doubt, alot of stress from that also. Couldnt have come at a worse time hey ho! Thanx again.


caz59 x


yes it is a stressfull time....DLA is also as of next year going to be regularly assessed and awarded as per health limitation...!!

i fear for people with hidden disabilities as i dont think we are given a fair assessment at all. if we look ok then we must be ok....right???.....pppfffttt!!!


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