I was diagnosed with Discoid Lupus about 6 months ago, although I now realise I have had it for about 20 years! I have suffered with sun sensitivty ever since I was pregnant with my first child. Over the years I have learnt to stay out of the sun whenever possible. Three years ago we had a series of stressful events and 6 months after that my hair began to fall out and scaring appeared on my face. I had already been diagnosed with an underactive thyroid and so put the fatigue down to that condition although I could not understand why the tablets didnt make much difference. Eventually after much denial about my hair I went to the doctor who told me it was probably psoriasis, after various creams and potions didnt work on my face or head, he refered my to dermatology. Within 10 mins of my appoinment I had a diagnosis, I went straight down for a biopsy and blood tests, which confirmed it. Today after skimming over the surface of it for a while I thought I would look into it further and found all sorts of information and groups including this one. I am on Hydroxychloriquine and have a scalp lotion, but the problem is I have a smallholding and so avoiding the sun completely is not easy! So I decided to look for UV protective clothing, but I dont want swimming or surfing gear, just ordinary clothing, mostly to cover my lower arms which have been badly affected by this recent run of sunshine. I look forward to reading everyones blogs etc and am relived to find other people like me, I always feel people think I am a bit mad saying I cant sit out in the sun, I cant even walk around in the sun and I always feel very tired if I do.
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