Find the right rhumy in Scotland's central belt. - LUPUS UK

LUPUS UK

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Find the right rhumy in Scotland's central belt.

Flynn1 profile image
13 Replies

Hi I hope someone can help. I have had sle for 13 years and have been only treated with pain and thyroid meds but it got so bad I had to close my company down. I have lony been referred to rheumatologists regarding arthritis but he has never wanted to disguss lupus. Turns out my doc who has retired now hasn't documented lupus so back to square one. I am hoping someone will be able to recommend a rheumatologist in the central belt of scotland (although I will travel elsewhere for the right person) Some seem to be so closed minded to lupus. One rhumi told me I needed a psychiatrist at a point where I couldn't walk and my knees and ankles were so swollen I could only wear flip flops. If anyone can help I would be extremely greatful.

Thanks x

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Flynn1
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13 Replies
Tigerlily4 profile image
Tigerlily4

Did you have a positive LE Cell test Flynn? If so then what you say beggars belief and I would definitely find a new Rheumatologist!!! Sorry I can't help you with that personally as I'm way down south. Give it a few days and if no-one else here can I'll call my Rheumy and ask him to recommend someone for you - he may not know either but worth a try. Also try ringing Lupus UK Head Office to see whether they've had any Rheum guest speakers from your neck of the woods. Good luck!

Flynn1 profile image
Flynn1

Thank you very much for your kind offer Tigerlilly4. I have got a couple of names from fb in my area so will def give them a go. Still open to suggestions though.

Thanks again x

AlisonM profile image
AlisonM

Dr zoma, works from both hairmyres & Stonehouse hospitals is an expert on lupus, and a lovely man (if u don't mind appts running over!) did hear a rumour he was retiring soon tho :-(

Lankylonglegs01 profile image
Lankylonglegs01

dr zoma is retiring and has already had a leavin do so my he may already b retired southern general glasgow dr morrison or fraser r fab xx

Clem profile image
Clem

Doc max field, the royal infirmary, glasgow! x

Lupylass profile image
Lupylass

Dr Amft at the Western General in Edinburgh is a lupus specialist too.

Scoofiecoo profile image
Scoofiecoo in reply to Lupylass

Hi sorry I'm new to this - is that who you see?

Angbunt profile image
Angbunt in reply to Lupylass

I have Dr Amft @ western , brilliant doc highly recommended

Tigerlily4 profile image
Tigerlily4

You're welcome Flynn :) Great to see some suggestions already! If none of these are convenient for you for travelling, PM me with your location and I'll contact mine for other suggestions nearer (if poss). He writes quite a few papers on SLE and seems to have contacts everywhere.

Flynn1 profile image
Flynn1

Tigerlilly I meant to ask you what the LE cell test is ? I have had many many tests done but not sure what this one is! Thanks

Flynn1 profile image
Flynn1

Thanks everyone for the names and info. Going back to docs at end of week so that's great timing. X

fj14 profile image
fj14

Hi Flynn

I am also from the central belt, when i found out I had Lupus 6 years ago the Rheumatologist in Falkirk hospital didn't know what else to do with me, i was in so much pain, so they referred me to Dr Max Field in Glasgow Royal well i have seen many doctors over the 6 year and i would Highly recomend him, They run a clinic on a Thursday, you can ask your Doctor to refer you, or may even write to him yourself.

Regard

Fiona

Jacqueline93 profile image
Jacqueline93

Hi does anyone know of any doctors within Glasgow that specialise on lupus please?

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