LUPUS UK
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sleep

omg had a really bad night last night at 6am i still hadnt been to sleep i take sleeping tablets but the pain is so bad i cant even lie down. has anyone got any ideas that could help me thank you x

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hope u better now janette weres the pain worst when u lie down xx

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Sometimes - if you can manage it - a good overall stretch just before getting into bed can help reduce some of the pain. You may need to do this for a few nights before you notice any difference though. Lettuce( :-) ) know how you get on.

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hi jon its worse on my leftside by my spine. The hospital said its my muscles pulling and inflammed because my spine is crumbling and making the muscle pull. They told me to lie flat as much as possible because i cant take antinflamatories, but i cant even lie flat lol i have to laugh or i will cry

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Hi Janette, I can't take anti-inflamatories either and suffer badly with joint pain and when trying to get to sleep it seems worse. I have been prescribed amitriptyline which I take about two hours before I go to bed and it really does help relax muscles, joints etc. Its not a painkiller, so you still need to take them but it really helps me. Maybe they could help you too?

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thanks yols i will speak to the doctor i am on already having 2400 mg of muscle relaxent a day maybe a need a change of tablet thank again x x

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Glad to help - it seems we have quite a lot in common! I have had mini strokes too but did not realise it at the time until I had a brain MRI which said I had many! I thought I was just having bad migranes. I also have Hughes, Raynauds and SLE. How did you find out you had mini strokes?

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Hiya Janette - here are a couple of top tips for me- I was prescribed Amitriptyline too - its a low dose antidepressant which can be given in 10mg levels up to 70mg, take 2 hours before bed and this starts to make you sleepy usually.it is a muscle relaxant when used in these lower doses...Warning though side effects are pretty crap - hangover like feeling in the morning,dizziness and dry mouth so you have to weigh it up....other than that I agree with stretches before, after and during bed. If cant sleep get out of bed and read/have hot milky drink and dont try to fight it as the more you toss and turn the worse it can get. Ensure room and bed temperature is right, use of lavender always helps, relax and dont read or watch tv in bed or just beforehand. Also try meditating/relaxation techniques with controlled breathing which can take a while to master but works a treat. Sleep is a difficult one for all but also watch how much sleep you have during the day - try to push through with increasing your daily up time and then should be able to sleep better at night - give some of them a try and let me know how you get on!

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yols

i had 2 mini strokes 3 days after having my daughter nearly 11 years ago because i couldnt move my legs and 1 arm they did blood test this should lupus and hughes

hope you are ok take care x x

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st andrews

thanks for the info i am already on antidepressant and muscle relaxants and they help my moods and help with my spine but not with sleep

take care x x and keep well

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Hi Janette

I was recently prescribed Amitriptyline just 10mg as my Rheumy believed it would help with fibromyalgia I have alongside lupus. I have never slept so well, therefore more muscles are getting some rest & less painful (most days).

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Hi

I was put on amitriptyline to help me sleep too. I forgot to get my next prescription and I have been without amitriptyline for 5 nights and yes I can tell you that I will not be forgetting it again as I am having trouble sleeping and the pain is worse. Take care

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My GP prescribed Tramadol to help with my arthritis and I usually sleep on a hot water bottle, under my back & hips. With the Tramadol and a hot water bottle I'm usually out cold in about 15 mins. It defiantely helps with the pain in my spine. Amitrip' also works at getting me to sleep to as it relaxes the muscles inlcluding your brain. :)

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