Hello I was diagnosed with Fjbromyslgia 6 years ago. I was put on medication but it really made very little difference. At the time, my CRP was positive, which had the drs stumped, cause nothing else showed up in my bloodwork. A year and a half ago, I was diagnosed with under active thyroid, and have struggled with extreme fatigue ever since, even though they keep increasing my synthroid dosage. A couple months ago, I saw a rheumatologist, who told me my ANA was positive. She sent me for tons of tests and I went back this week for my results. She said I am showing some joint damage in my wrists, and my Chromatin is positive. She cannot diagnose me with lupus at this point as chromatin is a generic test and not specific to lupus, even though that's what she thinks it is, and she put me on plaquenil. She wants to monitor me and repeat my bloodwoek every three months for the next year. My fatigue and joint pain is horrible, and although discouraged to not have a certain diagnoses, I'm happy to be starting the plaquenil in hopes of making the symptoms better. I have a few questions....
-has anyone had a similar situation? Is it possible that lupus specific tests will show up down the road? Or will the medication stop everything from progressing and I'll never truly get a diagnosis?
-will the plaquenil help with fatigue?
-I have constant ear pain but no infection. I've read that can be the lupus....anyone else experienced this?
-and last question....about a month ago, I had a case of epiclertis. My eye was bright red and very painful. My optometrist said it can be caused by autoimmune disorders. Now that I am on medication, do I need to worry about reoccurring episodes?
I know, lots of questions. What a confusing time. Thank you for any input you may have