Have just had a 2nd brain scan showing micro bleeds could this be linked to lupus and what happens next.

Hi just had a brain scan and the dr at my referral to the memory clinic mentioned there was a few micro bleeds and it was nothing to worry about. My previous brain scan was two years ago and I had a few then too. This was the first I had heard of it. I was told that both the brain scans were just fine and now it turns out I am being told I have these brain bleeds and there’s a few more since the last scan. He’s writing to my gp with the findings but has assured me there’s nothing to worry about. It was suggested it was just lack of sleep, depression and fibromyalgia causing the problems. I have really bad constant headaches, balance and vertigo issues, constant nausea, blurred vision and memory problems. My mum and grandma both had vascular dementia and severe depression I don’t want to go the same way. Just taking the lupus medication and I am expecting all these symptoms to just magically disappear. My gps are useless. Does this mean I need a referral to a neurologist or do I get an appointment with my rheumatologist hoping that they can help me. If anyone has any ideas just let me know. Thank you am very grateful for any advice. 😀

[eekt]

Hi Jeromicus XOX ascribing your symptoms to 'lack of sleep, depression and fibromyalgia', seems IDIOTIC especially given your family history, so if you in an area where you can pick a doctor, ask for a referral to a vasculitis expert...if not, folks say you can see Dr Jayne in Cambridge for around £200...I'm likely to go down the vascular dementia road given my mum's probable (undiagnosed) SLE...but there are treatments to stop progress....be bold, be pushy, be found right! We're backing you! xxx

[Hidden in reply to eekt]

Thank you so much for your advice. Am so sorry your having similar issues and that your mum has yet to be diagnosed. I will ring the rheumatologist and ask for a referral to a vascular expert if not I will pay to see dr Jayne in Cambridge as I am just being fobbed off by my dr and the memory clinic. I was quite insulted when he blamed it on depression it’s their go to word that they use when they don’t want to get involved or help. Both my mum and gran had severe depression and mental health issues so I am being classed as the same. They just want to give me anti depression tablets he couldn’t get me on them fast enough. I don’t need tablets just the right experts to help me might be a start. The last visit they suggested counselling. I just need to sort my physical health out then I will feel a whole lot better. Do you have the tele no for dr Jayne or do I just call the Cambridge hospital. Thanks again.

[eekt in reply to Hidden]

Yup, my ex-GP forced antidepressants on me (and had a 60 quid bonus for doing so instead of doing some diagnosing) and even after SLE diagnosis by three blood tests, continued doing so...it's not you, it's them...stay strong and keep posting! XOX

01223 586796 and [e-mail] Google turned up for Dr Jayne at Addenbrookes, but it might be different contacts for his private services

So many folks go through the same GRRR but its horrendous when you have such clear clinical symptoms xxx

[Hidden in reply to eekt]

Am so sorry what you have to go through. Will make the call Monday. Thanks again have a great weekend. 😀

[eekt in reply to Hidden]

Have a good weekend too, we're all in it together XOX

[UrsaP in reply to Hidden]

Their go word for most things when they don't want to admit they don't know. So very annoying. I wonder why Dr's feel they can't admit to not knowing, and do the right thing - refer you to someone who might. Good luck

[Hidden in reply to UrsaP]

Yes I thought he didn’t know. I asked what is it and what causes it and what could happen in the future. He couldn’t even explain to me and just said I will write to your dr and that was that. Now going to insist I see a neurologist and a vascular expert. What a carry on not just for myself but for other lupus sufferers too. I hope one day we all get better care but until then at least we have a wealth of experience on this site. I have learnt so much on here from some lovely people. Have a great weekend and thanks again for your reply. 😀

[UrsaP in reply to Hidden]

I suspect far too many have lupus and other autoimmune that is nt being picked up through poor knowledge. And sometimes a lack of interest. Wishing you the best of luck in getting sorted. Don't give in and insist.

[Mandypandy1969]

i have all the symptoms you have mentioned but not had brain scan. i have fibromyalgia but not sure if it's lupus aswell which is what i was first diagnosed with. started taking mycophenolate 2 weeks ago which treat lupus and not fibromyalgia. xx

[Hidden in reply to Mandypandy1969]

Hi only had the brain scans due to memory loss. It’s how I found out about the bleeds. I will find out about the medication your on and can see if that will

help me. Thank you. Have a great weekend and thanks for the advice. Cheers. 😀

[Mandypandy1969 in reply to Hidden]

No problem. xx