Hello. Im New on this site...

[Lovelylin]

Hello,

Im Linda and i have LUPUS for over 28 years.. Im Born in The Netherlands, Living in the UK now for 4 years with my husband Shane! I would Like to make some Friends who lives in Blackpool..and more places...(UK).and having nice contact by email..I have some friends, but they are working.. and futher I have no Friends.. I would like to make friends..To Talk about everything..Also about LUPUS..I Hope To hear many people who answer this blog!!! Like you can see, my englisch is not very good..but I think everyone will understand it!! (I Hope) We Will see.. I really hope to hear from everybody who wanted to contact me!!!! Think About it..I Have LUPUS...But LUPUS doesnt have me!!!

[AngelaW]

Hi Linda

I've only had Lupus for 6 years and most of them have been trouble free but I am currently having a few problems! Blackpool is my home town, but I now live a bit further away in Morecambe. Though I no longer live there I do still have family around the area. Oh, and your English is much better than my Dutch will ever be!!!

Take care, Angela xx

[Lovelylin in reply to AngelaW]

Hi Ya, Angela...

Thank you so much voor your answer back...I would like to keep in contact with you, if you also would like that! My Family is coming over soon, I miss them Loads..They stay here for 2 and 3 weeks..My Parents are staying for 3 weeks, and my Nephew and second Mum staying for 2 weeks.. Its also soon my Birthday and wedding day.. I am Married on my Birthday!! At this moment I dont have really any problem, Living in Blackpool at the Seaside is the best thing I ever have done.. I feel a lot better with the fressair...

Dutch its a lot harder to learn, thats for sure..I hope to hear from you again, and ps I dont know where Morecample is!! Never hear from it befor...Well better late then Never... xxTake Care, Greetz Linda

[AngelaW in reply to Lovelylin]

Hi Linda, well Morecambe is not far up the coast from Blackpool. It isn't as lively as Blackpool, it's a lot quieter but that suites me fine at this stage in my life! Until 3 years ago I used to live a lot further away from my family and only saw them a couple of times a year so I understand the importance of seeing them and I hope you all have a brilliant time together. Congratulations of your marriage, hope you have a fantastic day! Take care, Angela xx

[Hidden]

hello lovelylin

i have only been diagnosed 4 months ago so its been very hard for me to take everything in

i have always wanted to live near the seaside with lovely fresh air but i live down south near london.

all my friends also work so i understand how you feel and you being in uk away from your family must be hard.i love my family and could not cope with out them around me to cheer me up when lupus gets me down.#

i think your english is excellent its such a hard language to learn so well done.

good luck for your wedding day and hope all this rains clears up for you.

debbie

xxx

[Lovelylin in reply to Hidden]

Hello Debbie..

Thank you for yr answer! Its really hard, for not seeing my family, but I have also a lot family overhere(from my husbandside) The LUPUS is finally stable...I have had a lot of things with the LUPUS in the 28 Years.. I read you just have it for a few months..I really hope for you that it is good under controle...I feeling Lonely somedays, husband is also working long days.. I try to find things to do as a hobby..Like now I make compact Mirrors with flatbacks..We will try to sale them on the Carbooty? I would like to keep in Contact with you aswell..Hope you will like that too...I never have been in London..But 1 day we will go and see if it is really likes everyone said!!Thanks for your kindly..its also my birthday on my weddingday! so we have 2 partys to gooo.

Hope to hear from you again.

Greetz Lindaxxx

[Blueberry]

Hey I'm nearish you, in Liverpool x very newly diagnosed here.

A 28 year veteran is impressive! Well done to get this far and still be smiling - inspirational! x

[MelissaJean]

Hello Lovelylin, i'm also new to this site. I live in Durham NE England, I was diagnosed with Lupus when I was 23, but my symptoms started in my early teens, They found I had MVP with a heart murmur at age 11. Was due for open heart at 23,due to fluid around my heart that was collapsing my left ventrical. But only had a 15% chance of making it off the table, so they said we'll wait for you to have a heart attack then fix it. anyway its been a long haul. I'm also away from my family,I'm originally from NY but moved to the UK with my son in 2005. I'm also looking for friends.

Melissa.

[dgleds]

I have mild lupus, but a test came back high MVP just the other day..Its around christmas time and Im outta town so this one is a little scary...I dont understand that test...everything else seems ok right now..i have also had hypothyroid stuff for many years..its been up/down...I havent been called yet by doc...im in canada now ,we have a thing where u can see ur results online...

[Bowenlady]

Welcome to the group. I live in Wales. This is an amazing group. I’m new to the group too but have already had so much help and support. You have come to the right place. X