I would like to ask Paul Howard, does anyone from Lupus UK lobby parliament on the behalf of Lupus UK?
Also, I know that the womens institute take on specific topics to support each year and they also have lobbied parliament in the past and made a huge difference. Could Lupus UK contact the women's institute to see if they would support Lupus, especially with lobbying. I am noticing more and more people having difficulty applying for Benefits and being turned down, it's a disgrace! I'm fortunate that my husband supports me financially but there could be benefits that I'm missing out on. I don't apply as I know the stress would just make me bedridden! Please help those who can't help themselves! X