raising lupus awareness: Hi guys. 45 years old... - LUPUS UK

LUPUS UK

31,602 members28,008 posts

raising lupus awareness

amandalilley profile image
3 Replies

Hi guys. 45 years old, lupus since 1999, transplant neede thanks to lupus.

Nearest specialits for me 300 miles away in london, trying to raise awareness with my daughter and here friens.

NEW WEBSITE to visit ; beatthebutterfly.com

vids, posts, real time chat room coming soon, questions, answera, tips, hints.....

fun side with a serious message.

interview on radio cornwall this week, hope to have secrued tv interview with top london specialist.

Fundraising going on.. help us to help everyone with lupus, visit us, follow us, tweet us... support us PLEASE, no money required.....unless you wish to donate. Thank you.

Ladies... make up tips!!!! lol

Written by
amandalilley profile image
amandalilley
To view profiles and participate in discussions please or .
Read more about...
3 Replies
janiceray profile image
janiceray

good luck

Yols profile image
Yols

Great work girls!

Your mum must be very proud and she is lucky to have her daughter and friends help, support and fight this illness.

Wishing you huge success in your task.

Best wishes

Yols xx

amandalilley profile image
amandalilley

Thank you so much for your thoughts and best wishes.

Please feel free to comment, leave me messages, post on the site.

Keep in touch, talk to us, send funny pics, poems, blogs, news articles, anything that you think might help with the battle against ignorance.

Thank you again.

Have a wonderful day as best you all can.

Take care

Mandy. xx

You may also like...

Lupus party. Raising awareness and funds for lupus uk

a little talk on living with lupus. May try and include a short lupus quiz. Just to make sure...

Lupus awareness/fundraising evening

Five days till our Lupus fundraising awareness evening!!! SAT 4th MAY (this sat). In Bracknell near...

20 Simple Ways You Could Help Spread Awareness and/or Raise Funds for Lupus Awareness Month

'like' the LUPUS UK Facebook page – http://facebook.com/LUPUSUK 3. Send a tweet about lupus 4....

Lupus awareness fundraising evening

have written recently to remind you all about the lupus awareness eve on may 4th. My family are...

20 Simple Ways You Could Help Spread Awareness and/or Raise Funds for Lupus Awareness Month

1.Send a tweet about lupus 2. Share our new video;...