Reaction to Moderna vaccine: Hello Have any of you... - LUPUS UK

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Reaction to Moderna vaccine

Ali_B profile image
53 Replies

Hello

Have any of you experienced a reaction to the Moderna vaccine? I had mine on Saturday and by the evening my arm was so painful, I couldn't sleep. Sunday morning I woke up with a red rash and swelling some way below the injection site. This has increased.

This is my third Moderna vaccine ( all previous ones have been Pfizer but can't get it now) and had no reaction to the other two.

A Google search listed 'Covid arm' and states it will go within a week. Do I just wait it out? I'm currently taking 400mg of Hydroxychloroquine daily for my Lupus.

Thanks in advance

Alison.

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Ali_B profile image
Ali_B
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53 Replies
DorsetLady profile image
DorsetLady

Have you reported it via the Yellow Card system… and did you take paracetamol for 24-28 hours after vaccine.?

yellowcard.mhra.gov.uk

Ali_B profile image
Ali_B in reply toDorsetLady

Yes did it first thing this morning. I didn't realise there were other variants of the Moderna vaccine as well - I may well have had a different type on the two occasions before.

Yes, I did take paracetamol in the evening but it didn't touch the pain. 😞

DorsetLady profile image
DorsetLady in reply toAli_B

I’m just off for mine -will report back if it’s Moderna one!

If your arm is no better tomorrow think you probably need medical input… 😊

Ali_B profile image
Ali_B in reply toDorsetLady

Good luck! Yes think I might have to...

Spanielmadlady profile image
Spanielmadlady

Had mine a couple of weeks ago without any problems...didn't even get a sore arm x

Ali_B profile image
Ali_B

Glad yours went without any problems. This is the first time I've had a reaction to any of the vaccines. I'll call my GP tomorrow!

Cathyan profile image
Cathyan

I had significant swelling , itching and redness around the injection site for nearly a week and a dramatic lupus flare 3 days after the injection which is only just settling. Never happened to me before with any of my covid jabs. Worrying.

Ali_B profile image
Ali_B in reply toCathyan

It is worrying, isn't it? We're advised to have them but this reaction has scared me and like you, has started a flare. I hope you are starting to feel a better now.

Cathyan profile image
Cathyan in reply toAli_B

Thank you, Ali. And you.

Halfwayuphill profile image
Halfwayuphill

My husband has had exactly the same reaction and he has no connective tissue or immune problems. It’s still there but seems to be a bruise now a week later. I’ve just got him to report on the yellow card system. I’ve yet to have mine as cancelled it three times due a flare with gut and uti problems. Incidentally one of our centres do walk in which I’m going to do. It’s difficult to predict how I’ll be in advance.

Hope your arm is better soon

Ali_B profile image
Ali_B in reply toHalfwayuphill

Poor Hubby 😔 I hope it all goes well when you have yours.

EG74 profile image
EG74

I had Pfeizer on Sunday and with any covid vaccines my arm is sore for around 24 hrs or more. No other side effects

Ali_B profile image
Ali_B in reply toEG74

Are you in the UK? If so, I thought Pfizer was no longer available here.

EG74 profile image
EG74 in reply toAli_B

Yes in Edinburgh. The vaccine is called bretovameran that is manufactured by BioNTech Manufacturing/ Pfeizer Manufaxturing Belgium

Ali_B profile image
Ali_B in reply toEG74

Ok, thanks for letting me know. Going to mention that to the GP!

DorsetLady profile image
DorsetLady in reply toAli_B

According to this it is -

healthunlocked.com/pmrgcauk...

Ali_B profile image
Ali_B in reply toDorsetLady

When I asked I was told it wasn't available anymore. I accepted the Moderna vaccine because I'd had it twice before with no issues. Fuming now!

DorsetLady profile image
DorsetLady in reply toAli_B

Maybe it wasn’t available in your area - no idea how they are distributed..

Ali_B profile image
Ali_B in reply toDorsetLady

That's a good point!

Krazykat26 profile image
Krazykat26

Yes I had a bad reaction quite a while back now. Had bruising on my arm for about two weeks and it brought on a serious flare. I haven't had any boosters since. After all I do spend all of my life avoiding triggers as much as possible. I hope you feel better soon 💜🌈🦋

DorsetLady profile image
DorsetLady in reply toKrazykat26

If you had bruising then would say that was because the person administering vaccine was at fault. Not necessarily the vaccine itself.

Ali_B profile image
Ali_B in reply toDorsetLady

I've not got bruising, just red patch that is swollen and hot. Still got pain in my arm too.

DorsetLady profile image
DorsetLady in reply toAli_B

I was replying to Krazykat26 re bruising. Sorry to hear you still have swollen/hot arm - have you tried calming it down with cold therapy?

Ali_B profile image
Ali_B in reply toDorsetLady

I have but it's too painful. I will send a photo to the GP and hopefully get it sorted. Appreciate your advice and I'm glad you've not had a reaction!

Ali_B profile image
Ali_B in reply toKrazykat26

It's definitely made me question if I'm going to have further boosters. The last thing any of us need is more flares!

grumpyold profile image
grumpyold

I had Moderna Spikevax 5 days ago at 2 pm. By 9pm my arm was aching really badly and felt like it was on fire and by bedtime, the rest of me felt like it too. My face was bright red and hot to the touch. I hardly slept a wink, I was burning up and sweating.

Next morning, my partner said I looked awful and went to find our thermometer. I had a temperature of 37.8. Officially fever level.

I felt really spaced out until early evening but I gradually cooled down during the day. Now, 5 days after the jab, I can finally raise my arm again, though there is a hard lump at the injection site, which itches.

I have never reacted to any of my previous Covid boosters.

Reading DorsetLady's reply, I wish I had taken paracetamol afterwards. I have reported it via the Yellow Card system.

DorsetLady profile image
DorsetLady in reply togrumpyold

Sorry to tell you this 😊 -I had Moderna/Spikevax yesterday -apart from mild headache for about an hour a few hours afterwards - and usual slight tenderness around site - no issues.

But then I never do… must be something to do with being a Viking goddess (in-joke on PMRGCAuk forum). Too lengthy to explain!

grumpyold profile image
grumpyold in reply toDorsetLady

🤣🤣🤣

DorsetLady profile image
DorsetLady in reply togrumpyold

If you have a time to spare - post is a bit ancient-but then so am I🙄

healthunlocked.com/pmrgcauk...

grumpyold profile image
grumpyold in reply toDorsetLady

Will have a look later. Off to do supermarket shop 😱.I'm quite long in the tooth too .x

DorsetLady profile image
DorsetLady in reply togrumpyold

S/shopping - ugh!

grumpyold profile image
grumpyold in reply toDorsetLady

Yup, loathe it too.Just checked out the Viking link.

Seems we have a bit in common. I was blonde all my life but with green eyes. Celtic blood...I have inherited genetic haemochromatosis aka the Celtic curse.

Been Pagan since forever. Called my whippet Freya ( the other was Kali after the Hindu goddess of destruction).

I'm a little bit younger but certainly a "warrior" 😁....less and less tolerant as the years go by.🤣🫂🕉️

DorsetLady profile image
DorsetLady in reply togrumpyold

Think we all get less tolerant as the years progress -although I prefer to call it “better informed and less gullible “.. 😊.

grumpyold profile image
grumpyold in reply toDorsetLady

You're right. 🤨x

Numptybrain profile image
Numptybrain

I had bad reaction to Moderna too, I’ve never had that one before I had sore arm for days and felt terrible. I know others have felt the same so I don’t know what’s different about it.

Take care

Wendy cx

Ali_B profile image
Ali_B in reply toNumptybrain

It's worrying, especially when it's not happened before. I hope you have now fully recovered.

Spotty-ewe profile image
Spotty-ewe

I had a similar reaction to what you are describing with my shingles vaccine. My GP put me straight onto antibiotics as he said it was a soft tissue infection caused by the jab. Like you the red swollen patch (no rash in my case) was below the site of injection. It might be worth sending a photo to your GP to make sure it isn’t an infection. Best to be safe than sorry. Take care. Xx

Ali_B profile image
Ali_B in reply toSpotty-ewe

I think a photo to the GP is a good idea 😔

Spotty-ewe profile image
Spotty-ewe in reply toAli_B

That’s what I did and my GP phoned me straight back and put me on the antibiotics. I notice you said the patch is hot and spreading. That’s what mine did until the antibiotics halted it. Don’t delay. Let us know how you get on. Xx

Ali_B profile image
Ali_B in reply toSpotty-ewe

I will do. X

loopy-lou profile image
loopy-lou

So sorry to hear of your reaction and hope things improve quickly. I had the Moderna booster in spring and went in to a 17 day flare not leaving the house. I had only a mild bruise like feeling to the injection site. Previously, I had no side effects from the Pfizer one. I haven't had my winter booster yet. I would send a photo through to your GP for advice. Take care x

Ali_B profile image
Ali_B in reply toloopy-lou

Sounds awful, I hope you're feeling better now? I'm going to send a photo to the GP and see what they say.

Stitchrunner1 profile image
Stitchrunner1

Hi. Yes the vaccine can make your arm quite sore. It is perfectly normal. It is strangely enough a good sign. It is a good reaction by your body to a foreign invader. You are being protected will. Only if it goes scarlet and swollen should you check with your GP or if the pain lasts longer than a week.

Ali_B profile image
Ali_B in reply toStitchrunner1

Does a scarlet patch that keeps spreading count?! It's still hot and swollen too. A colleague today said it could be a blood clot!! 😕

BrigidsFire profile image
BrigidsFire

I’ve always had a sore arm and a large pale pink area (Covid arm), an instant headache and flu like symptoms after my jabs. But I had mine yesterday and this time the injection site is red, hard and hot to touch. And *extremely* itchy.

I’ll report to the yellow card thing. I’ll still keep having them though. Having been hospitalised twice with Covid (lupus has damaged my lungs and I have fibrosis and ILD) the alternative is worse than the vaccine!

Ali_B profile image
Ali_B in reply toBrigidsFire

Same symptoms as me. I've reported it and am going to see a photo to my GP. I hope you feel better soon - you really have had a rough time!

BrigidsFire profile image
BrigidsFire in reply toAli_B

This what mine looks like this time. Usually it’s a large area that’s pale pink and a bit tender. This time it’s much more concentrated.

Red skin patch at Covid vaccine site.
Ali_B profile image
Ali_B in reply toBrigidsFire

Ouch! Mine is a large red patch, underneath and nowhere near the injection site. I hope your arm settles down soon. x

chrisj profile image
chrisj

Happened to me some years ago, my arm was painful with a lump at the injection site. I rang my gp who told me it was a reaction to the vaccine, nothing worry about and to put ice on it, wait a few days and if it didn't clear up to ring again and arrange to go down to the surgery. It cleared up 😊

I was on the same dose of hydroxy as you for Lupus. Can't recall what the vaccine was but it settled down. I shouldn't worry xx

Ali_B profile image
Ali_B in reply tochrisj

I have tried to ice it but it's too painful. Gulping down painkillers and going to send a photo to my GP!Hopefully it'll settle soon like yours did!

chrisj profile image
chrisj in reply toAli_B

I understand your concern, it frightened me. Good luck, got my fingers crossed for you xx

Ali_B profile image
Ali_B in reply tochrisj

Thank you ☺️

Ali_B profile image
Ali_B

I just wanted to say thank you to everyone that replied and gave me their advice and support. GP agreed it was a reaction to the vaccine and advised me to watch and wait until today. Thankfully it has settled - rash, swelling and heat have gone. I have still got pain but it comes and goes. It has caused a flare though - but what doesn't?!Thanks again 😊

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