Am I breaking on the inside?

[andreiab]

this pain has no precedent. It feels like my body is glass and it keeps cracking slowly while I’m in agony.

I need this to go please.

Help

What Is this?

[MrsMarigold]

Hello andreiab. Not a lot of information from you to try and help. It sounds like you are feeling very delicate and in pain. I’ve myself gone through such awful, painful times. Even though walking hurts, I do it. Even though my hands are swollen and painful I use them. Even though my mind is exhausted I read and put notes on the refrigerator to help me memorize passages of encouragement. Even though I want to sit and feel like rubbish as you Brits say, I go help someone or something.

Given all that, if you feel broken for too long, is it time for a doctor appointment? Time for different medicine? Best to you,MM🌼

[StriatedCaracara]

Best to maybe be honest with GP.I'm not sure whether this is physical and or mental health related.

I felt in pain and falling apart when my treatment was not sufficient to stop symptoms. I was caring after my elderly mum after my dad passed away with cancer.

My GP used social prescribing, and also.my rheumy increased the amount of hydroxychloroquine was on and prescribed short course of steroid.

Help is available. Don't give up.

[Cazpurple]

I have fibromyalgia (diagnosed 2009) and lupus and CTD (diagnosed 2023) other stuff too

In 2018 I was hit with what we think was inflammatory arthritis. I was hit in every joint with extreme swelling in hands and feet. I got stuck on the toilet twice even with a toilet surround as i couldn't use my hands and so much pain in groin and joints. Getting out of bed was like climbing Everest and then had to sleep on a disability chair that reclines and stands you up. This lasted several months. I was on morphine (tablet and liquid) naproxine and anti inflam injections. I was told this was possibly a one off due to a virus. Scanned hands showed no signs of rheumatoid arthritis. Was showing early signs of lupus.

Luckily i haven't had to this extreme again. Would not want to go there ever again. I also live on my own so was very difficult. Had some real pity parties.

Hope you feel better soon.

[MrsMarigold in reply to Cazpurple]

I’m so sorry. This must have been so very difficult on your own. Almost 2 months ago I had to walk about the house with a walker. I have tendinitis and inflamed muscles in hamstrings, glutes, hips. Pain is intolerable.

Always trying to push on and looking forward. Pity parties involve a quart of chocolate icecream and my own spoon. lol. I’m a fairly petite person and the calories don’t stick on me. A very intense pity party involves a huge apple fritter and 16 ounces of milk. It will go to my hips. Inflammatory foods for inflammatory moments. The older I get; sometimes I need to shrug off all the get well rules. 😊Best to you MM

[Cazpurple in reply to MrsMarigold]

I like your type of pity party. I just take each day as it comes. I don't beat myself up anymore if i have to stay in bed or rest up. I do what i can, when i can.

Several years ago I went through the pain clinic. I learnt the traffic light system. At the time I hated doing it but now i realise how good it was. For a week we had to monitor what we did and used coloured pens next to it. If your doing an activity and your pain is ok or low, you get a green light to continue. If you start getting warning signs and pain levels are up, then you get amber. Red is when you've overdone it and now your in too much pain and are resting, pain pills and reaching for that ice cream!

The goal is not to get to red. Heed the warning signs from your body. Easier said than done as life always throws curveballs and of course when you autoimmune your body likes to do what it wants, when it wants