Immunoglobulin test results any ideas

[KnitSewPurl]

Hi everyone,Sorry for the long silence, I have not been well, been coughing up blood. Sputum been alittle bloody- clumps of blood . Daily blood and mouth been so sore with blisters and ulcers until I had difficulty swallowing. It keeps coming back recurring over and over .

So , I saw a new chest consultant when checked my lungs and started me on a course of antibiotics for 1week yes it is not enough for a week but hey all I can do is try. I was still coughing up blood. Fresh blood.

Nystan still made no difference.

Until we switched to Diflam. I just been 1 week of using Diflam on 1-2 time a day. Some days 3 times . But now I am just using it X1 a day as it is nearly settling down the blisters on my tongue but the throat is coming back again. Really end of my teater . So Chest consultant also tested me for Immunoglobulin.

This is the result. Hope you can help me out on this . I don't speak to her until mid Jan next year. Just would like some inside so that I have some sort of question what sort of thing I should be looking out for and treatment I should be looking out for. How I should go about with this ? Just alittle puzzled. I take cetirizine daily because of this constant irritation of throat and nose and eyes and inflammation. And nasal spray as and when it gets worst.

But this infection is bugging me constantly. Bowel , chest, urine . Throat . Why am I so susceptable to it . Especially now they have take me off Hydroxychoroquine. It is getting worse. Especially my throat. Legs keep getting spots after spots . And you would not believe they have me a telephone appt for me first appt for the Dermatologist (NHS) what a joke . Even my hubby couldn't believe. How are they supposed to asses and view the skin 🤦🤷😂. Such a joke . NHS is a laughing joke through and through...

What can I say..hope you guys can help me out on this .

[Hoofprints]

I'm so sorry that you are having a horrible time.

I cannot help with the blood test results and hopefully someone else will be along soon who knows more.

I wonder if being taken off the Hydroxychloroqine has made your symptoms flare?

Have they also given you a full blood test, appropriate to having lupus? I would think you need your complement levels checked, especially C3 and C4 as well as your full bloods, including neutrophils.

I understand your frustration with dermatology. I had over a year for a first appointment, by which time the rashes were suppressed by treatment and couldn't be biopsied to confirm the diagnosis of f urticarial vasculitis syndrome.

Hang on in there 🤗

[FredaN]

That sounds so painful and obviously coughing up blood is pretty scary. I have just had Difflam prescribed for geographic tongue (and a patch of lichen planus) by the dental hospital, but haven't actually tried it yet. They also prescribed me some steroid tablets, that you dissolve in water, swill around your mouth and spit out. Again, I haven't tried them yet, as they said to keep them for when things are really desperate. Could you ask a GP to prescribe something similar? I can check the name of them if that would help?

I don't know if it relates to your symptoms, but it looks like your IgM is a bit low? I think IgM is usually high in acute infections (or just all the time in my case, it seems), but I seem to remember something regarding it being low making you more susceptible to infections.

I can believe Dermatology have given you a telephone appointment, as they're doing my head in for the same reason! They're supposed to be monitoring the en coup de sabre on my forehead, but they'll have great difficulty measuring it over the phone 🙄 It took over a year for the first Dermatology appointment and I saw a registrar, who didn't know what to prescribe for Erythromelalgia and said the en coup de sabre on my forehead doesn't cause neurological problems (it very much can). She since wrote to my GP, telling her to prescribe me two meds (for Erythromelalgia) I can't take, as they said they couldn't get hold of me - they haven't tried! GP said no and that they need to discuss with me, but still haven't heard from them (apart from to put the telephone appointment back a couple of weeks). The NHS is dreadful - I don't think many people realise how badly many of us are being failed until it happens to them or someone close to them.