I have never been tested for Lupus or Sjogrens. Only Pemphigus (Negative). I get massive blood blisters in mouth and throat, obstructing airway. I can no longer eat any solid food. The slightest knock on my forearms gives me deep red weals and blood blisters. I am 56. I have fibromyalgia, hemidiaphragmatic paralysis, gross displacement of the abdominal organs, gastric volvulus, silent reflux, laryngospasms, asthma, painful joints and muscular pain. I used to be so fit. I can endure all of this, but the lack of concern over the blood blisters leaves me utterly depressed. No one gives a damn. The ones in the throat are worst. I gag and retch til they burst, only then is the airway cleared, but the pain is awful for weeks afterwards. I daren't eat anything which isn't pureed. Even a sesame seed can set this off. I'm permanently iron deficient due to Omeprazole and bleeding from these injuries. Intubation is damn near impossible because it damages my tissues even more. I am at my wits end. Doctors just do not seem to care. These are the ones you CAN see. I cannot photograph inside my throat. How do you get a GP to take you seriously? They've seen these things and still they don't understand how distressing it is. Thankyou for reading. I hope someone can point me in the right direction, and if anyone else is going through this, you are not alone.
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