Facebook group for parents of children with heart block

[Ladybird_22]

Hi!

My daughter was diagnosed with heart block when she was a year old. I've found it really hard that so little information is available about heart block in children, and there is no specific group for affected families in the UK. I am sure that lots of families have useful knowledge and experience, and I'd really like to get a group together to share information and to encourage more support for children with heart block. To that end, I've set up a Facebook group for people with congenital or childhood heart block and their parents or carers. I would love for you to join if you have a child with heart block so that we can create a community in the UK.

The link to join is facebook.com/groups/1812843...