I have created a group page in honor of my sister who sadly died last year from complications due to Lupus.
Unfortunately, there were lots of mistakes made and we feel she was failed by the NHS, partly because doctors did not take into account all her underlying conditions and medications before performing a simple operation.
Please take a peek and join us in the group if you feel you have been failed by the NHS.
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Lupusrelative
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So glad you’re able to spend a lot of time with your family.
Much love to you and your family.
EvaJo x
Wow LR, I repeat the sentiments given by HoneyBug. I am so very sorry!! May your sister Rest In Peace, and I’m sure she is🙏. How old was she?
Please forgive me for not joining your FB group. I do not have FaceBook, but I wish you all the best (I am in SouthernCalifornia. My father was from Colorado and I have many relatives there. Beautiful state!)
I am so sorry for your loss, your head must be all over the place. Lupus is awful and so misunderstood.
I'm recently diagnosed adn have not had a good experience and put in a complaint a week ago in regards to my care (or lack of). I posted my experience on here (click on my profile, should be easy to find) and have had so much help from here. I cannot thank everyone here enough. The help and support is huge.
This is such a difficult area. Liverpool is generally a good place for Lupus patients. Sadly there are problems to be addressed. Personal experiences are not easy yet we need to drive the the positive outcomes of the NHS and their hard working medical folk. HealthUnlocked is a good place to have that debate - not Facebook. My sincere condolences. Kevin Weston Chair Lupus UK
Yes, there are many good rheumatologists in the Liverpool area. They are not the doctors who caused the problems! I wish they had been consulted, then the outcome may have been very different!
The joining up is the key. Yours sister’s story helps to drive me to enable the correct outcomes. It’s a very rocky road when we lose someone so young. Sincerely Kevin
My sincere condolences to you and your dear family, Keep strong , her passing was not in vein, as she lives on in your hearts, and the wonderful site created by you for the world to share. May the stars above show you a twinkel each night shining down from above, that twinkel is your dear one, your sister, at peace. Respectfully, the stormy sunshine
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