Facebook Group Cure the NHS - Liverpool Hospital ... - LUPUS UK

LUPUS UK

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Facebook Group Cure the NHS - Liverpool Hospital Trusts

Lupusrelative profile image
24 Replies

I have created a group page in honor of my sister who sadly died last year from complications due to Lupus.

Unfortunately, there were lots of mistakes made and we feel she was failed by the NHS, partly because doctors did not take into account all her underlying conditions and medications before performing a simple operation.

Please take a peek and join us in the group if you feel you have been failed by the NHS.

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Lupusrelative profile image
Lupusrelative
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24 Replies
honeybug profile image
honeybug

So sorry for your loss.

🌹🌿🌹🌿🌹🌿🌹🌿🌹

🕊🌍🕊🌍🕊🌍🕊🌍🕊

🙏😔🙏😔🙏😔🙏😔🙏

🤝🤗🤝🤗🤝🤗🤝🤗🤝

🦋🌸🦋🌸🦋🌸🦋🌸🦋

I and my family send our sincerest sympathies from across the pond in Michigan, USA 🇺🇸.

So happy for you and your family that this group is in honor of your beloved sister.

I pray that a vast improvement will happen as a result of her tragic passing from the errors made.

Abundant blessings on all who attend and the solutions found.

EvaJo x

Lupusrelative profile image
Lupusrelative in reply tohoneybug

Thank you so much Honeybug. I am, in fact, on your side of the Pond in Colorado. My family is in Liverpool and I spend a lot of time over there.

Thank you again.

honeybug profile image
honeybug in reply toLupusrelative

So nice to meet you. You’re very welcome my dear.

So glad you’re able to spend a lot of time with your family.

Much love to you and your family.

EvaJo x

Wow LR, I repeat the sentiments given by HoneyBug. I am so very sorry!! May your sister Rest In Peace, and I’m sure she is🙏. How old was she?

Please forgive me for not joining your FB group. I do not have FaceBook, but I wish you all the best (I am in SouthernCalifornia. My father was from Colorado and I have many relatives there. Beautiful state!)

Lupusrelative profile image
Lupusrelative in reply to

She was 62. Thank you 🙏

in reply toLupusrelative

Again, I am so very sorry. My heart breaks for your family.

djsema profile image
djsema

Good morning, I'm so sorry for your lost. May you sister RIP.

My thoughts and prayers are with you and your family🙏🙏.

Please can you send me the link to join the group.

Lupusrelative profile image
Lupusrelative in reply todjsema

Thank you dj. If you search for it on fb, it should come up xx

djsema profile image
djsema in reply toLupusrelative

Hi do I put the name of the hospital in ?

Lupusrelative profile image
Lupusrelative in reply todjsema

Just what it says....cure the NHs - Liverpool Hospital Trusts xx

Ceri-NorthWales profile image
Ceri-NorthWales

I am so sorry for your loss, your head must be all over the place. Lupus is awful and so misunderstood.

I'm recently diagnosed adn have not had a good experience and put in a complaint a week ago in regards to my care (or lack of). I posted my experience on here (click on my profile, should be easy to find) and have had so much help from here. I cannot thank everyone here enough. The help and support is huge.

Stay strong, sending huge hugs xx

svfarmer profile image
svfarmer

Oh my goodness that is awful- so sorry for the loss of your sister - sending hugs 🤗

Oshgosh profile image
Oshgosh

That’s awful,sorry for your loss

Lupusrelative profile image
Lupusrelative

Yes, everyone on this group is very supportive of each other! 🙏

djsema profile image
djsema

Thank you. 😀👍

Lupusrelative profile image
Lupusrelative

Thanks Sue. We are very angry....and heartbroken xx

Kevin53 profile image
Kevin53

This is such a difficult area. Liverpool is generally a good place for Lupus patients. Sadly there are problems to be addressed. Personal experiences are not easy yet we need to drive the the positive outcomes of the NHS and their hard working medical folk. HealthUnlocked is a good place to have that debate - not Facebook. My sincere condolences. Kevin Weston Chair Lupus UK

Lupusrelative profile image
Lupusrelative

Hi Kevin.

Yes, there are many good rheumatologists in the Liverpool area. They are not the doctors who caused the problems! I wish they had been consulted, then the outcome may have been very different!

Kevin53 profile image
Kevin53

The joining up is the key. Yours sister’s story helps to drive me to enable the correct outcomes. It’s a very rocky road when we lose someone so young. Sincerely Kevin

Bakbre profile image
Bakbre

So very sorry for your loss, may she rest in peace.

English_Patient profile image
English_Patient

So sorry for your loss, my thoughts are with you and your family at this difficult time.

thestorm profile image
thestorm

My sincere condolences to you and your dear family, Keep strong , her passing was not in vein, as she lives on in your hearts, and the wonderful site created by you for the world to share. May the stars above show you a twinkel each night shining down from above, that twinkel is your dear one, your sister, at peace. Respectfully, the stormy sunshine

Lupusrelative profile image
Lupusrelative

Thank you for those beautiful sentiments Stormy Sunshine

thestorm profile image
thestorm

💖💖💖💖💖💖💖

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