Methotrexate

[robsim]

Good morning. I was taken off Mycophenolate and my Rheumatologist is now contemplating starting me on Methotrexate. Has anyone found this drug beneficial. I would love some feedback.

Thanks

[FlowerdownAnnC]

Hi I’ve taken methotrexate for about 15 years. I personally have found really beneficial. I had side effects initially which would make the next day or two after taking it difficult ( nausea, fatigue ) and that lasted a long time. The benefit I got from this FAR outweighed the side effects so I persevered. Fast forward to now & I don’t feel many side effects during the days just after taking it but in conjunction with hydroxychloriquine I’m overall well. ( enough symptoms to know it’s not gone away but few enough that I can manage my life) Good luck with it whatever you decide.

[Lovemydogs1]

Life saver for me. I had mouth ulcers the first few times I took it but now no problems and I now feel as close to well as I possibly could. Have been on it more years than I can remember. Good luck

[HazelW]

I swear by methotrexate. It has controlled my Lupus really well & I've had no side effects. Hope it works as well for you .

[Wangpaupau]

Why have you been taken off Mycophenolate? I have been taking Methotrexate 10mgs since 2017.Occassional flare up with my hands, nausea & tiredness but I feel it keeps my RA pretty much under control. I have 3 mthly blood test to check for Full blood count, liver, kidney function.

[ShannonB]

I was on mycophenolate for years but it stopped helping me and I finally switched to methotrexate in October. It has been a total godsend for me and my lupus is better managed on this than it has been for years. I know it doesn’t suit everyone but I was hesitant and am so glad I tried it.

[lupie46]

I took methotrexate for 12 years and it was great. It stopped working and I was moved to mycophenolate. Good luck!

[Krazykat26]

I've been on MTX since 2019 and it's given me back some quality of life..my horrendous rashes are history! I still have breakouts n I still flare but they are more manageable. I have more energy too though still have to be careful not to overdo it.I have recently changed to metoject which are methotrexate injections to increase uptake of the drug.

When I took my first dose in 2019 (tablets) I had a mild neadache n some weird visual disturbance n numbness in my left hand..that was all and I only had that the once. Beauty of MTX is that we only have to take it once a week in a single dose.

You'll still have regular blood tests to make sure you're ok on it. Your prescribing doctor should also prescribe folic acid..I take 5mgd folic acid every day EXCEPT the day I take MTX. I hope it helps you. Good luck if you decide to go ahead 💜🌈🦋xx