Methotrexate advice. : Has anyone used Methotrexate... - LUPUS UK

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Methotrexate advice.

Foodman500 profile image
12 Replies

Has anyone used Methotrexate to manage their symptoms?

I've been prescribed but wondered how people have found it?

Thanks

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Foodman500 profile image
Foodman500
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12 Replies
svfarmer profile image
svfarmer

Hi yes I have been on methotrexate for the last 3 years and it’s very well tolerated- I know a lot of people get nauseous with it but I take it no problem at all xx

HazelW profile image
HazelW

I have been on Methotrexate for several years and swear by it ! My symptoms have been very well controlled since I started on it & my rheumy is happy with the results. I know it doesn't work for everybody but when it does work it is very effective . Good luck - I hope it works for you !!

Foodman500 profile image
Foodman500 in reply toHazelW

Hi, would you mind telling me your dose or of you had any side effects?

I'm really apprehensive about taking it.

Your message is quite reassuring.

A x

HazelW profile image
HazelW in reply toFoodman500

I am now on 15mg , taken on a Saturday, and I have had no side effects at all. Hope it works as well for you.

Kath1 profile image
Kath1

Hi I inject 22.5mg once a week (I started on tablets at a lower amount). It does make me feel a little nauseous the day after but it is the best thing I have taken for helping my symptoms. It affects everyone differently but it is certainly worth giving a go and seeing how you get on with it. Any issues just let your consultant know and they should be able to adjust things to help you. Try not to worry, I hope it works well for you :-)

Hamptons profile image
Hamptons

My mother in law is a new woman on it. Joint pain dramatically reduced and is more mobile. Sadly, I did not tolerate it. But it is worth the effort as when it does work it’s brilliant. All drugs are scary-focus in the outcomes it could bring you

Krazykat26 profile image
Krazykat26

Hi Foodman

I started taking methotrexate 9wks ago n I'm very pleased with the results in such a short space of time!! I've had no significant side effects n can tolerate it orally.

Definitely give it a go 🤞🤞you'll find it helps u too

Kat 😽😽 xx

Barbara17 profile image
Barbara17 in reply toKrazykat26

Hit Kat, I’m now three weeks in and my skin is starting to clear! Having some days of extreme fatigue but I’m going to persevere. At the moment I’m only taking one folic acid tablet a week and I wondered if you take more than that?

Krazykat26 profile image
Krazykat26 in reply toBarbara17

That's great news Barbara!! 💐💐🥂🥂🎉🎉

With the folic acid u have to take one tablet every day EXCEPT on the day u have methotrexate..so u should be on six tablets per week rather than just one.

I'm so pleased it's working it's magic on your skin too!! 🤗🤗🤗

Kat 😽😽 xx

Barbara17 profile image
Barbara17 in reply toKrazykat26

Thanks for speedy reply. The consultant said one folic acid per week but the 🌟GP said she thought 6 would be better for me so she’s put folic acid on my repeat prescription and she gave me two months supply to start me off so I think I probably need to up the dose. I’m off hydroxychloroquine too after five years so my body will be adjusting to that too.

Krazykat26 profile image
Krazykat26 in reply toBarbara17

Yes your GP is right!! My dermy prescribed mine n he explained that it's so that the methotrexate can work efficiently..it uses the folic acid apparently..so it's a combination of the two that we have to take!!

😽😽Xx

Jhpc profile image
Jhpc

Yes I was on Methotrextate for 2 years, took about 3 months to kick in, didn’t have any side effects. Good luck hope it works for you.

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