Biopsy : I am feeling so irritated as now on day... - LUPUS UK

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Biopsy

Cal66 profile image
27 Replies

I am feeling so irritated as now on day 4 after biopsy on my face. We have lovely warm sunshine i am wishing that i could start get the garden tidied, grass has suddenly grown and there must be a 100 yellow dandelions in the grass

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Cal66 profile image
Cal66
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27 Replies
Spanielmadlady profile image
Spanielmadlady

The bees will thank you for leaving the dandelions alone Cal x

Cal66 profile image
Cal66 in reply to Spanielmadlady

They might, but my nephew is frightened and my puppy barks at anything even birds flying in the sky

Spanielmadlady profile image
Spanielmadlady in reply to Cal66

Puppies will bark at their own shadow but its all not worth stressing over .I'm in a stress induced flare caused by a fall in which Ive torn my ATFL in my ankle ...might need surgery still in a brace ,my eldest dog have a bout of geriatric vestibular disease vet gave us 7 days to get her back on her feet and having a sick 91 year old parent to look after.all since dec .we also have a large area of grass ( about the size of a football pitch) to maintain as part of living in our cottages and thousands of dandelions and daisies have been happily in full bloom. I know waiting for biopsy results is stressful but don't make yourself ill over trival things x

MrsMarigold profile image
MrsMarigold in reply to Spanielmadlady

Hi Spaniel mad lady/geez just saying your name in my head makes me smile. I tore my ATFL in 2016. I hear you. It’s awful. When they say it would be better if you broke it, you know it’s bad. I got X-rays and MRI but I said no to surgery. I wore 2 different boots for 6 months. I wear compression hose or socks and gave up on any shoe over an inch heel. Now 2023. It will be 7 years In July. When it flares my ankle swells a bit and I can have pain up to my knee. Then you know: ice rest repeat. Best to you and read good books: every time you must get up and care for your dog or your mother concentrate on the muscles you are using and how strong and stronger they become. MrsMarigold 😍and your flowers especially dandelions sound amazing. What eye candy!

Spanielmadlady profile image
Spanielmadlady in reply to MrsMarigold

Hi Mrs M.my name comes from a sweatshirt my daughter bought me one year which says crazy springer spaniel lady.Yes that's because it has a poorer blood supply.mri in Jan showed significant injury ...also damaged peroneal tendons.5 weeks in boot now in ankle splint as it still rolls inwards. Still an odd shape and painful waiting for steroid injection in it start physio on Friday.my Rheumatologist has no.problem with them doing surgery said I should be OK if pred is below 10 mgs. I get pain up to.my knee also.

I knit and crochet but not getting much time to sit just now.

It's now a sea of dandelion clocks ...a gust of wind and they will be away.

Big hug 🤗😚 xx

Cal66 profile image
Cal66 in reply to Spanielmadlady

HiHow are you going to get yours done with your injury if its as big as that? Blossom would definitely love your garden as she runs as fast as a grey hound, howels when she hears an ambulance & was sings when they sing God save the king and did I say that she barks at birds flying in the sky. One year I paid a gardener to cut the lawn and tidy up the garden, he kept asking me if I wanted him to do other work and cost me about £500, so now I like to do everything myself, but if grass gets any higher I won't be able to do it myself.

Take care of yourself.🐾

Spanielmadlady profile image
Spanielmadlady in reply to Cal66

It's like everything else Cal I've got no choice but to crack on.ive now become the soul carer for my mum who was independent until Christmas. She collapsed in town in feb and spent 3 weeks in hospital.millie (14) made a complete recovery from the geriatric vestibular disease....it gives symptoms like a stroke...not seen anything like it she was a vegetable on the sofa for 2 days by day 5 she was back on the beach but walked to the left.that too was Feb.It's a communal green between 2 rows of houses we have to look after between us all.i have a petrol mower and a willing son but he works full time so can't always do it. when it's short and dry I can manage although it does put me out of breath.i start physio this week after they lost the urgent referral orthopaedics put in in Feb.i fell twice in 3 weeks 2nd time on 23rd Dec I heard it snap.havent ruled out reconstruction surgery but reluctant due to me being immunosuppressed . I can walk on it but it's still an odd shape and painful.on the list for steroid injections 1 in atfl 1 in peroneal tendon.Your pup sounds adorable my 2 are seniors now and both are deaf.they used to love running through long grass.

Do you raise the cutting height when it gets long ? Good job the grass cutting season is only 6 months .

Take care and be kind to yourself. 🤗 xxx

Cal66 profile image
Cal66 in reply to Spanielmadlady

HiTake care of yourself, I am very lucky that my sister, nephew and I live with my mum. Mum was my carer but since she was so ill with pneumonia in November 2021 she is very frail and so it is up to us to take care of her only trouble is she won't eat ir or admit to herself about her hearing or any other thing wrong with her, so she gets frustrated with us & we all get frustrated with her. The trouble is no one likes to not be able their independence taken away from them and I know myself how frustrating it is and I'm sure that your probably having the same problem with your mum.

Keep safe and look after yourself.

🐶

Spanielmadlady profile image
Spanielmadlady in reply to Cal66

Sorry your Mum.is so frail .I'm prone to pneumonia and its horrible. My mum collapsed with what turned out to be postural hypotension and we are struggling to control bp. She can't accept she can't go out when she wants or on her own anymore.i now have to look after her house and garden as well as my own.just have to rest when I can ....the dusting can wait lol.I used to do end stage dementia care and small portions of their favourite things are sometimes the best policy xx

Cal66 profile image
Cal66 in reply to Spanielmadlady

My mum is so stubborn, as she refuses to accept her diabetes, mild deafness and second hand emphysema. My mum didn't smoke but my dad did and she also gets mild confusion, especially when she is tired or chest infection. The confusion really started when she had delirium with pneumonia that is the most frustrating as she gets angry with my sister and I.

Spanielmadlady profile image
Spanielmadlady in reply to Cal66

Yes mum had delirium In the new year after a Chest infection .it can take months to completely resolve.Yes thanks my tests came back as columnar hyperplasia. I have a titanium marker clip in for future reference. Waiting for the Mcquillian nurse to ring was horrendous.

It will all be over before you know it xx

MrsMarigold profile image
MrsMarigold in reply to Spanielmadlady

So sorry SML. Your ankle sounds worse than mine was and mine was terrible. I hope you get relief soon with steroid injections. Yea right now enjoy looking at garden/green space. Perhaps ask a neighbor for help. Your dear mum. And all your responsibility as carer. Coping with all that is hard life right now. One thing I know is life changes eventually and new challenges arise. And even restful times. Sometimes we think the restful times are boring as we ourselves are limited. Today is a restful day for me. And I’m thankful for that. We had a tornado skip through our garden 4 nights ago. It was scary yes. Now we have the job of cleaning up the debris and mourning my trees that were cut down. The heat is near 90F so I can not do much at a time. Here it is before sunrise so as soon as She shines I can clean up for a bit. Then resting with book therapy lol. Best to you and your mum, MrsMarigold

Spanielmadlady profile image
Spanielmadlady in reply to MrsMarigold

Thanks .oh no as long as you are all safe is what matters. Yesterday was a rest day as it rained all day. We've got some jobs to do in her garden today before son goes back to work tomorrow...repairing shed after wind blew neighbours fence over on to it so covered up head to toe with a gallon of sun cream. Thankfully it's not hot here. Take it easy tiding up and enjoy your book xx

Suvi8901 profile image
Suvi8901

Dandelions, daisies, meadowsweet etc are all part of NO MOW MAY campaign to help feed pollinating insects eg bees, bumblebees, butterflies etc etc.

My suburban lawn is actually over1 foot high now and I shall be cutting the grass soon.

Hover mower does a great job much better than the wheeled rotary ones that are always promoted these days.👆👏

Important campaign.👆✅ “NO MOW MAY”!❤️

No mow May lawn!
Cal66 profile image
Cal66 in reply to Suvi8901

My puppy will get lost in the grass if it grows any longer as she is only 12 inches tall, I was trying to put her photo on but it wouldn't let me

Suvi8901 profile image
Suvi8901 in reply to Cal66

Your puppy will love my garden! ❤️ Guaranteed.🤣🧐

Krazykat26 profile image
Krazykat26

Sounds like you've been through a lot Cal 🤗I've had a biopsy when disease was active and I know it's no fun. Mine was on top of my left arm..I can only imagine what it's like on the face 😖I'm taking it that you're flaring coz that's when they tend to take biopsies so you're already gonna feel low. All I can really say is that I get really irritated when I'm flaring..irritated is not quite word for the way I feel when lupus is in charge. 😤

All I can say is rest up..u have to no matter how much you fight it it will flatten u. Dandelions are wild flowers and whilst they are there they're feeding the bees n adding nutrients to your soil so it's not all bad. Gentle hugs 🤗💜🌈xx

Cal66 profile image
Cal66 in reply to Krazykat26

Thanks, getting stitches out Wednesday, I am dreading it, absolutely terrified is more like it. My lupus I am trying to just deal with it as best as I can, tired all the time but can't sleep at night, it's all going on. as usual.

MrsMarigold profile image
MrsMarigold in reply to Cal66

Hi Cal, Not sure why you are so fearful of biopsy? Just this morning I had stitches removed from my scalp. Biopsies everywhere. Little scars everywhere/she took one from my chest today as well. Little white stars. Whiter than skin that has had no sun for 15 years! Best, MrsMarigold

Krazykat26 profile image
Krazykat26 in reply to Cal66

Try not to worry..getting the stitches out is the best bit! 😁My lupus has been flaring since October when my husband gave me Covid. You're not alone 🤗 This is a great place to sound off and get support coz we all understand the frustrations of having too much to do and no energy to do it!

I've left my garden wild..I'll try n post a pic. We've got dandelions, daisies, forget me nots and bluebells (majority of them are native) ..it's beautiful!! 💜🌈Xx

Bluebells n dandelions
Cal66 profile image
Cal66 in reply to Krazykat26

Your garden looks great, ours us mostly grass and dandelions You can't see the flowers beneath all the weeds, still as the weather improves hopefully our lupus will take care and thanks for your reply 😀

Krazykat26 profile image
Krazykat26 in reply to Cal66

Thank you 🙏Good luck for tomorrow 🍀💜🌈xx

Spanielmadlady profile image
Spanielmadlady in reply to Cal66

You will be fine.i had 9 biopsies in oct after a mammogram recall.im not sleeping very well just now either but its a while since I had an insomnia spell. I increased my pregablin last night and faired abit better but was still awake early and eventually got up and sat crocheting x

Cal66 profile image
Cal66 in reply to Spanielmadlady

Thank you. I hope that we're your tests all came back all clear. To be honest up to now I feel that I could take a diagnosis easier than getting my stitches out, especially as quite a few are touching the corner of my eye, which is 1 reason I'm worried, anyway this time tomorrow they will be out & feel silly for all the fuss.

BonnyB profile image
BonnyB in reply to Cal66

Hi I hope the removal of stitches went okay for you. I'm waiting for dermatology appointment and have been worrying they'll do a biopsy on my face. I guess it's the firsts that get us all upset.

Hope you are recovering well xx

Cal66 profile image
Cal66 in reply to BonnyB

Hi BonnyBI was referred to dermatology plastic surgery had I not a latex allergy then it would have been done in my outpatient appointment. I think he did a more thorough check as it was done under local anastasia in the operating room. I won't l lie & say it wasn't painless as getting the injection in my temple really hurt. I feel so silly for being so worried about getting the stitches out, but the nurse had them out in less than 5 minutes. I will get the histology report within 4 - 6 weeks, but I think that they will be OK, if not then that will be another illness to battle with.

I hope that don't wait too long for your appointment and good luck if you have to get a biopsy done as well, I am very soft and not a fan of injections so don't let me put you off or scare you. If you are worried and want to talk then you can send me a message via chat, bye for now.

BonnyB profile image
BonnyB in reply to Cal66

So pleased it wasn't as bad as you anticipated. Please don't feel silly for anything. All that matters is you got through another battle. We have so many to deal with- think thats the issue!

Rest up.

Thanks for the information , much appreciated x

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