crying inside

[Greentomatoes]

Just putting this out there as I am crying inside. I have had to cancel a lovely night that was planned for my friends, their daughter & my daughter. I have the food, wine, treats etc. however at 1am I started V & D .Made it to bed for 6. Is it lupus or a bug, who knows but I am so fed up of nice things being cancelled. My daughter is upset, mostly at me and the world. She is a teenager. I have tried explaining but she is angry with lupus, with me. My mum is sick just now and I am barely holding it together. I needed one night. Just one to make me feel normal and feel like a good mum. Anyway, you guys are the only people who understand. Sending love

[MEGS53]

I feel your pain and distress, I really do.

Things will get better though, 🤗🤗🤗

Take it day by day, xxx

[Greentomatoes in reply to MEGS53]

Thank you 💚

[MEGS53 in reply to Greentomatoes]

😘😘😘

[CarolMcl]

So sorry to hear you're unwell and I fully understand how you feel. I've lost count the amount of occasions that have had to be cancelled, I feel at times that I let everyone down. Although we can't help it, we still feel guilty which is totally wrong as we're not to blame, it's this bloody illness!! I really hope you and your mum feel better soon and you get the night out that you deserve 💕.

[Greentomatoes in reply to CarolMcl]

Thank you 💚🙏🏻

[CarolMcl in reply to Greentomatoes]

Keep strong, thoughts are with you

[JCZW]

hi Greentomatoes

So sorry to read that you are feeling so aweful. It always seems the same when you are looking forward to something so much Lupus rears it's ugly head. It's as though it doesn't want us to have fun.

I really hope you feel better soon. Sending you big hugs.

[Oshgosh]

xx

[Hidden]

rotten luck. But there WILL be other chances. Feel better soon.

[Hidden]

Hi

Please try and take care of you, first and foremost. It’s easy to get lost in the upset, but you are ill and need to recover. Others upset and disappointment can show as anger, especially with teens. But, it’s the Lupus your daughter will be angry with, it’s just directed at you as you are the one that’s ill and it’s the only way she can let off steam about your illness. Anger and upset is a sign she cares deeply, if she wasn’t upset then…well, you can fill in the blanks!

‘I just wanted one day’ - oh, just how many times have we all said that! ✨

[MusicalFurbaby]

Hi Greentomatoes, oh that is such a shame! I know what it’s like to have that one thing to look forward to, that one sliver of normality, and then the rug is pulled out from under your feet. I’ve had (recent) days when I’ve totally lost the plot after cancelling yet another thing, dissolving into a wailing, screaming, blubbering mess. It’s easy to feel like things will never get better. Hang in there—tomorrow might be better. 🌈🌻💕

[PositiveT]

Morning . I do hope you are a little better today? Look for the rainbows they are out there...

These things happen it is not your fault.

Take care.

[Minnie2000]

So sorry to hear you are feeling like this Greentomatoes. I can fully relate. I have a family wedding this weekend and am having a terrible flare-up with my joints. I've been looking forward to this wedding for so long but now I'm wondering how I'm going to cope. There is no answer but just knowing someone understands hopefully helps. It really is rubbish. Hope you start to feel well again soon. Take care.

[Geeforce99]

Hi Greentomatoes,

I feel your pain and grief you just need to rest and think better times will come, 😃I work four hours then sleep rest of day due to fatigue so not been out since feb 2022. Sounds like flare up or hidden covid best wishes hope things improve real soon x

[SufferingMike21]

Hi I think I speak for all of us with lupus these things always crop up at the wrong time .There will be other times

[Partner20]

There are a lot of different bugs doing the rounds at the moment unfortunately. Hopefully your current blip will be short-lived and you will feel better soon. 😘

[solo99]

You are the one with Lupus and yet it was you that planned a lovely night for those you love!

Sounds to me like you are a good mum and a lovely friend. It's easy for people to say be kind to yourself, but so hard to do when you have to negotiate Lupus and all it's tantrums.

You are not alone in this 🥰🥰🥰

[Louby1954 in reply to solo99]



Undifferentiatedconnective tissue disease is a mouthfuls & very complex to explain Lupus is horrid bit much easierto explain

[2013mayo]

I’m sure it’s a bug going round, I’ve been feeling very I’ll just lately, very bad cold, nausea and chest infection, it’s one thing after another. You will get through this, when you do try to do your best with what energy you have.

🍀🍀🍀🍀

[Louby1954 in reply to 2013mayo]

very unwell tested positive for covid

1st time & only had my 4th booster jab 5 days before it has affected me horribly. Its Pfizer same as others. Its a trial new jab have yellow carded it. I am not a frigging guinea pig!

[RAD120]

Sending big hugs

[missingtravel]

Thinking of you and sending my warmest wishes. Take care 💌

[CecilyParsley]

Oh bless you lovely. I am so very sorry. Chronic ill health is inconvenient, and downright soul destroying at times. Your daughter will come around I am sure. I sometimes think the more I look forward to something the more chance of being unwell. We had theatre tickets booked Thursday and I felt awful, joint pain, sweats, gut pain, rashes and about two hours sleep. I was determined to go and thoroughly enjoyed it but it took a toll. Sending you big Cwtches and the hope of a better tomorrow xx

[Louby1954]

hello greentomatoes

love the name just picked lots of red baby tomatoes

small tiny & juicy all grown organicallyas all my fruits vegetables& salads are

getting excited as tomorrow having a quote for a pergola & hot tub

time to treat myself & put me 1st for once in my life. At 68 I think I deserve this

hope all goes well for you

stay safe & well & above all be happy 😊

[Greentomatoes in reply to Louby1954]

thank you xx

Enjoy your pergola and hot tub!! Definitely time to spoil you 💚

[hopegalore20]

Totally understand where you are coming from. This type of illness just turns your life upside down. Normality is mo existence. You just look forward to having good days with some joy and happiness to keep you going, and when your plans get scuppered, it puts you on a low. It does impact on all family members as they wish to see you enjoying happier moments. But hey, lots of good times will follow

[Betty909090]

If it’s V&D (vomiting and diarrhoea) caused by the Norovirus then you’ve done the right thing by isolating and not socialising.

It’s very common and easily transmitted to others particularly in winter!

Even in hospitals there are these stay away notices if you’ve got it!

It’s the others around you who don’t understand that need the education! It may take a week to get over it?

Rest up and drink plenty!

All the best.

[Poshcards]

I so feel for you, you sound just like me, I haven't had any of my family in my home since covid began and I swear they think I don't want them, I have to cancel about 3 out of 4 planned rides out and I still shield, take care and keep going xx

[svfarmer]

hi Greentomatoes I’ve only just seen your post - I do hope you are feeling better now - lupus sucks , it really does. Your daughter will be more understanding as she gets older and things will approve - sending lots of love 🤗🤗❤️