Does hot weather make your lupus worse? Even thou... - LUPUS UK

LUPUS UK

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Does hot weather make your lupus worse? Even though it is inside a room?

Babymilo
Babymilo

I know that lupus is sensitive to sun, but I want to know whether the hot temperature make you worse too. I work near a heat press and lately I realized that everytime I went near that for a long time I got very tired. Even though it is not associated with Ultra Violet, but the machine cause a very hot temperature in a room. I want to know if you have the same experience with me.

10 Replies

Yes! No doubt about it. My lupus is triggered by heat, light...either/or & both together 😉

🍀🍀🍀🍀 coco

Babymilo
Babymilo in reply to Barnclown

Thanks for the reply. I think my trigger is heat too. Can't stand in a hot room

Yes, I'm really intolerant of heat and uv. I have a very narrow 'operating' range, outside of which my body goes into melt down!

Babymilo
Babymilo in reply to Rubylu

Thanks for the reply. Just realized that it is not only the sun too. So hard when I live in a country that is very hot

Rubylu
Rubylu in reply to Babymilo

Strip lights can cause a problem, but you can get uv filters for them. My pc at work is low resolution but high contrast to reduce uv exposure. I use fans a lot to keep my rooms cool during hot weather.

Heat is a huge factor for me, makes me so tired and nauseous. Leaves me extremely weak and completely useless, I just lay there retching until I cool down. We even went to the extreme of having air con fitted in the bedroom as the heat makes me that bad.

I know that some people with MS wear cooling vest and cooling scalves around their neck because they can be very heat intolerant. I wonder if that sort of thing would help you?

Babymilo
Babymilo in reply to Rubylu

Thanks for the advice maybe I will try to look for that. My country doesnt have winter so its kind of hard to find clothes like that.

Yes very much so as soon as the sun starts to shine and its warm i start to feel very lethargic ,i have to organize my life around the weather .😥

Yeah defiantly. heat makes me feel really sick to point of where I have to sickness pills to just use public transport on hot sunny days.

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