Hey all.. hoping you are all feeling as well as possible.
As have you I'm sure/hope, the NHS are sending me emails and texts to suggest I get the booster. Thing is my last one was beginning of July... it was my 5th... so have I to wait until the 6mth mark I wonder... would rather get jabbed again pre winter if I could. And part of the info the links on the email takes you to says immunosupressed etc should have it after 3mths.. but I'm not sure I'm reading it right. Any learned opinions welcome.... Many thanks, D
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DJK99
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Hi, I had my 6th vaccine on Sunday along with my flu jab, my 5th was in April. I'm sure I was told 4 months between 5th and 6th but I honestly can't remember but you will be contacted. If it would make you feel better you could always phone the helpline.
my invite came from the nhs.l had no6 in sept along with my flu vaccine...no5 was in June. I'm steroid dependent and take mmf.no issues bar the basic effects hands and feet ached for a couple of days.
Thanks everso. I felt dreadful for 2.5days after the Spikevax.. cldn’t use arm, all night in loo and felt run over like the bad flares I’ve been getting. Had flu vaccine 2wks ago. Just wanted to confirm how long between 5 and 6 so am pretty sure I can go for the 6th now. My gp surgery is just starting now doing care home residents and so next will be social care workers etc I hope.. and then us. My area are pretty slow on this usually so I’ll just be careful til the invite as otherwise have to go to a big ole place by train and be with too many people. Gp surgery is marginally better! Thanks and hope you're doing ok. D
Really sorry to hear all that... Falls? Oh dear not good.. but also hoping the biopsies were ok? I think I saw a while back that they were "ok"? I had some too.. one good one bad. Right rollercoaster eh?! It makes us stronger, and I find, the more recurrences I have, the less I worry.. I get it done then forget it.. and sod the radiotherapy that would have probably been extremely problematic they said.. but then I'm a singleton with no family (can you hear those violins?? as sadly my brother passed two months ago (only 62) from sepsis due to complications with advanced Parkinsons. All very rough but he's at peace now. Anyway, I am so glad to hear that you are standing strong as you can be and smiling... I'm smiling back at you from here. xx
sorry to hear of the loss of your brother.parkinsons is a cruel illness. Ive looked after a few with parkinsons dementia.I fell out with the dogs and grazed my ankle and leg.the graze on my ankle ulcerated and took several weeks of inadine dressings to heal. My 9 biopies I kept quiet about and got the results last week diagnosis is columnar hyperplasia which is benign overgrowth of the blood vessel linings. Sorry to gear you have experienced similar..you are right it does make some of us stronger.i don't have alot of family my mum is 90 so deal with most things one my own.
finally today got a flu jab booked for son after they checked I was on the shielding patient list 🙄
Well I've spent today's spoons a day I've still got tea to make .sending you hugs of comfort 🤗🤗🤗
You will, in all probability, be Contacted- by Text, Email.... or even Letter (sorry if anyone needs to know What One Of Those Is, please PM me!). I have had Six Jabs, to date- along with a 'Flu' Jab too. (I'll be like the Cartoons, when I take a drink It will 'come out' all the Holes!)
You can always call 119, a few 'Hoops To Jump' but Very Helpful, once you are speaking to the right person.
yes I had my 6 th yesterday - it was 3 months - the nhs app will let you book if your time is right . My last one was July - book it in , it’s important and flu - I have lupus tumidus and Sjorgens
Yes the emails and texts were inviting me to book.. but I just wanted to check that at 4mths since the last one, that was ok. Thanks and v glad you had yours! D
...and had my flu two weeks ago.. yes I have lupus and sjogrens but also cancer, leaky heart valve and Atrial Fibrillation, inflammatory arthritis, neutropenia and hypocomplementemia (very low complement 4 and fluctuating low c3 - lots of research on that done in the last two years re covid death risk, not that my gp's get that though). So I'm sure they'll be calling me in soon - it's much better for me to go to my GP as it's small and I feel safer, otherwise it's a train ride and in with tons of people at the larger places. All the best to you. D
Hi,
If you just Google NHS Covid vaccine booking, you will find the booking website, then just add your NHS number, tick a few boxes and it will let you book if eligible. I went on just to check, booked my jab- and actually received the text asking me to book a couple of weeks after. Give it a go. 🙂
It’s a 3 month period that’s recommended. My last was July and just had my 6th a week or so ago. Flu and covid vaccinations this time around. Unbelievably I’ve now caught Covid at the end of last week and tested positive yesterday. Hope it’s a mild case. Good luck x
I tested positive yesterday too Adnil 🤧😷🤗 It's my first time too!! I hope you're treating yourself gently n that this passes quickly for both of us 💜🌈😽😽
hi DJK. I had my sixth injection at the end of September, three months after the fifth. No ill effects apart from a sore arm for a day, I’m in Scotland
mmmm 🤔 wonder why I've only had 2 full doses and 1 booster up to now if people are on #6. I actually go tomorrow for Autumn booster so I'll be asking the question.
Indeed. I take it you are on immunospression? I do have rather a lot of health complications, some not very nice, on top of the lupus etc, that have and are active so I think along with methotrexate and being naturally immunocompromised anyway I'm on the red list. Ask your surgery if you are on their red list, as this might start the conversation as to "why not?". Good luck Roy. D
HI. I'm on Mycophenolate at the moment but only a low dose at the moment but thinking about it now I was only diagnosed in March 22 so could be the records are only just catching up. I'll make sure iask the questions tomorrow though as could probably need a full dose now and a booster later on.
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as sadly my brother passed two months ago (only 62) from sepsis due to complications with advanced Parkinsons. All very rough but he's at peace now. Anyway, I am so glad to hear that you are standing strong as you can be and smiling... I'm smiling back at you from here. xx
Hey guys, why can't we collate our own findings?
Is it possible to have Lupus when blood results are negative?
When are we actually allowed out? I’m confused 
When you're having a rubbish time and your friends forget 🙄
Please be careful when stopping drugs. 
