*warning* Weird rash picture

[JennaShi]

Does anyone get rashes like this? One can argue this its sunburn and the jury is still out on that.

I got this after working outside on an overcast day with the sun peeking out occasionally. I had a t-shirt and gray hooded sweatshirt on the whole time (for reference). And the right side hurt hurt on my trapezius muscle the most.

It was hot, red, and hurt/ burned.

Sounds like a sunburn doesn’t it? Well It only lasted that night I believe (cant remember if it was that night only or the next day as well).

I have gotten sun burn before, but I was usually out in the sun for quite a while and the burn would get really bad, sometimes itchy and often peeling, and I would be exhausted.

I have been getting this red rash with burning on my trapesius muscle alot, not as bad as this one.

I found a very nice primary physician assistant, had my appointment yesterday, and got x-rays today of my neck and lower back and am thankful, she seems like she will be thorough. She says some similar things as the other doctors I’ve had; things like: “we ll this could be normal..” and agreed with Eibschutz (the Rheumatologist I was referred to) saying he’s the best, and if He says that I dont need to be seen, then I should be fine..🤷🏼‍♀️

I was sitting on the examining chair in the room for quite a while and my feet were turning purply- blue, and hands were turning blue ish and she saw them! Finally someone saw lol. It was cold in the room and my feet weren’t flat (so I’m wondering if this is why?) She checked my pulse in my hands and feet and checked reflexes and said they were good but kept remarking about them. I also showed her my pictures of when they turn pale and she thinks that its not Raynauds. As they would be more blue and not in all limbs. 🤷🏼‍♀️ It seems every doctor has a different opinion.

She asked me if if I was checked for Vasculitis. And said maybe the low hemaglobin has something to do with this and the fatigue/ breathlessness.

So we will see..

[nanleighh]

Hi JennaShi, I have that same rash on my neck daily. It never goes away. Even when I don’t go outside for days. It does burn sometimes. I would post a picture but I don’t know how. I would say, use lots of sunscreen when you go out. Rain or shine. Xo Nan

[JennaShi in reply to nanleighh]

Do you know what its from?

[nanleighh in reply to JennaShi]

I just figured it was part of my lupus rash. My doctor records everything, but there is so little known about lupus even though there is a lot of research going on and each one of us that has lupus has different experiences and symptoms. That’s why this forum is so great , every once in awhile you find someone with identical symptoms. It makes you feel less alone in your journey. Take care xo Nan

[JennaShi in reply to nanleighh]

Thank you for sharing and I definitely agree! I have heard many people talk about the rash and said when they’re out in the sun it itches more so was abit unsure about this one.

I also get a cheat rash and this similar form usually after eating something I know I’m sensitive to but dont recall it burning, do you ever find a correlation with food?

Definitely will be putting sunscreen on and wearing a hat, thank you.

[nanleighh in reply to JennaShi]

I don’t see a correlation with any food that I eat. It does get redder when I am in the sun, but I do live in one of the sunniest places on earth, Arizona. I have had the rash ever since my diagnosis in 2014, it has never gone away. I wish it would. I wish you the best of luck getting to the bottom of it. With warmest regards, Nan

[JennaShi in reply to nanleighh]

Thank you, thought I would ask :). That makes sense, have only been to Arizona a couple times and oh man does it get hot! That is great that you see the correlation with the sun. And you as well, hope you stay cool this summer. 💕